The teenage years are all about fitting in, so it’s completely normal to feel different or worried about how friends might react to your epilepsy. Sometimes it feels easier to keep it private, and that’s okay – it’s your choice who you tell. But hiding it can be stressful, especially if your seizures aren’t fully controlled, it might not always be possible.
When you do decide to talk to friends, you don’t need to give a huge explanation – just enough so they understand what epilepsy is for you and what to do if you have a seizure. You might be surprised by how supportive people can be once they know what’s going on.
It also helps to keep things in perspective. Epilepsy can feel like it takes over your lifet, but it’s only one part of who you are. Stay connected with friends, hobbies, and everyday activities – epilepsy doesn’t change that.
Conversation Starters
Here are some simple ways to bring it up if you’re not sure what to say:
- You know this medical alert bracelet I wear? It’s because I have epilepsy, just in case I have a seizure.
- Remember that TV show where someone had a seizure? I have seizures too, but mine look a bit different
- Yesterday when I was acting a bit weird — that was actually a seizure. They don’t last long, and just make me zone out for a bit
- I’m finding it hard to concentrate today because I had a seizure yesterday. It messes with my memory for a couple of days
- I can’t drink alcohol because of my medication. I take it to help control my seizures
Remember: seizures are nothing to be ashamed of. When you talk about your epilepsy confidently and calmly, it helps the people around you feel more comfortable too.
Listen to the Podcasts: Epilepsy, Talk About It
