Participate in Research
Expanding Medical Knowledge
Many people like to participate in research studies knowing that they are helping others by increasing the medical understanding of epilepsy, how seizures are treated and its impact on the lives of those who have the condition and their families.
In Australia there are strict rules governing human and animal research activities and approval through a recognised ethics committee is needed to ensure there is minimal risk to the participant and potential benefit to the community from the findings.
Before you commit to participating in a clinical trial, it is best to be fully informed about the objectives of the research, what is expected of you and any risks and potential inconveniences that may be experienced during and after the trial.
There are many different types of clinical research studies that may or may not be of direct benefit to you and these include:
- Intervention studies that seek better ways to treat epilepsy usually with a medication or new form of treatment
- Diagnostic and screening studies that look for better and more efficient ways to diagnose epilepsy and seizure activity
- Prevention studies looking at ways to prevent epilepsy
- Observational studies investigate epilepsy-related issues in large groups of people
- Quality of life studies that try to find better ways to improve the quality of life for people living with epilepsy and their families.
The National Health and Medical Research Council has detailed information available outlining who can take part, what to expect and important questions to ask about the trial and level of involvement.
It is important to know before you enrol in a research study that:
- Your participation is voluntary and you can withdraw at any time.
- The study information and consent form will explain exactly what you are agreeing to do during the study and you can ask
any questions before you sign the consent form.
- The research study may or may not help you personally.
- You can bring a friend or family member with you to any interviews or appointments.