Participate in Research

Participate in Research

Before participating in any research study requiring you to change or add to your current antiseizure medication regime, please consult your neurologist or treating doctor to assess the individual risks of possible medication interactions or exacerbation of seizure activity.

HealthMatch is an Australian health technology company designed to help patients directly access clinical trials. Epilepsy Action Australia has partnered with HealthMatch to provide members with easy access to the latest clinical trials being conducted throughout Australia.

You can sign up, select your condition, create a profile and answer a simple questionnaire to determine if you are eligible for any currently recruiting clinical trials. The platform allows users to create a profile which means that when new trials become available, you will automatically be notified of these opportunities.

HealthMatch can be used by members, their families and health professionals. To access HealthMatch please click on the banner below.


Types of Research

Epilepsy Research

Medicinal Cannabis


Epilepsy Research

Alfred Health hospital logo

 

This trial is a world first to investigate the effect of 6 months of treatment with sodium selenate in people with medication-resistant temporal lobe epilepsy  – to see whether, as in the pre-clinical animal studies, there is a sustained beneficial effect to reduce seizure frequency and neuropsychiatric comorbidities, even after the medication is ceased.

Recruitment has commence in Victoria and will then be recruiting in other states. 124 patients will be enrolled across at least 9 sites nationwide over 2.5 years.

For more information click here

Examining the efficacy of an online Cognitive Behaviour Therapy (CBT) – based self-management program for adults with neurological disorders

Macquarie University’s eCentreClinic is looking for adults with epilepsy to take part in a free online course to help Australians with neurological conditions learn to manage:

  • Stress, anxiety, frustration and worry.
  • Low mood, sadness, grief and depression.
  • Day-to-day mental or cognitive activities.
  • Day-to-day physical activities.

Click here to find out more about this Wellbeing Neuro Course and current research trial

Medicinal Cannabis


Currently recruiting

In partnership with The Lambert Initiative for Cannabinoid Therapeutics and the University of Sydney, the aim of this project is to better understand the lived experience of Australian adults and parents/guardians of a child or person with epilepsy who have tried medicinal cannabis to treat the epilepsy.

The results of the survey will provide us with invaluable information that we can use to better advocate for your needs when speaking to policymakers and health professionals about cannabis medicines.

 

 

You are eligible to participate if you:

  • Reside in Australia,
  • Are aged 18 years or above,
  • Have a diagnosis of epilepsy (or care for a person with epilepsy),
  • Have tried using cannabis product(s) – illicit and/or prescribed – to treat the epilepsy.

 You may open the survey by clicking this link: https://bit.ly/cape-survey

The survey will take approximately 15-20 minutes to complete.

Please feel free to contact the [email protected] if you have any questions

This was approved by the University of Sydney Human Research Ethics Committee [Approval ID: 2023-313].

Many people like to participate in research studies knowing that they are helping others by increasing the medical understanding of epilepsy, how seizures are treated and its impact on the lives of those affected by epilepsy.

In Australia there are strict rules governing human and animal research activities. Approval through a recognised ethics committee is needed to ensure there is minimal risk to the participant and potential benefit to the community from the findings.

Before you commit to participating in a clinical trial, it is best to be fully informed about the objectives of the research, what is expected of you and any risks and possible inconveniences that may be experienced during and after the trial.

There are many different types of clinical research studies that may or may not be of direct benefit to you and these include:

We are seeking the thoughts of women with epilepsy who are approaching the menopausal years, or currently in perimenopause, menopause, or post-menopausal phases of life.

By completing this anonymous, 2-minute survey you will be contributing to the scarce knowledge base about the lived experience of women living with epilepsy and how you can be better supported through this period. Epilepsy Action Australia is assisting A/Professor Lata Vadlamudi from Queensland University with this survey.

The insights from this survey will form the basis of a collaborative research funding application with the University of Queensland and Monash University.

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Please scan the QR code or go to https://survey.app.uq.edu.au/women-with-epilepsy-after-childbearing—consumer-survey