Participate in Research
Many people are well-meaning and would like to participate in research studies to further our understanding of epilepsy, therapies to treat seizures, and the impact of epilepsy on those living with the condition and their families.
In Australia there are strict rules governing human and animal research activities and approval through a recognised ethics committee is needed to ensure there is minimal risk to the person and potential benefit to the community from the findings.
There are many different types of clinical research studies, such as:
- intervention studies seeking better ways to treat epilepsy;
- diagnostic and screening studies look for better and more efficient ways to diagnose epilepsy and seizures;
- prevention studies;
- observational studies; and
- quality of life studies to find better ways to improve the quality of life for people living with epilepsy and their families.
It is important to know before you enrol in a research study that:
- your participation is voluntary and you can withdraw at any time
- the study information and consent form will explain exactly what you are agreeing to do during the study, and you can ask any questions before you sign the consent form
- the research study may or may not help you personally
- you can bring a friend or family member with you to any interviews or appointments.