Research Equals Hope
Research is central to creating a future where epilepsy can be effectively treated, death is preventable and cure is possible. Epilepsy Action Australia welcomes and supports research that significantly impacts medical, allied health, psychological and educational approaches to the diagnosis and treatment of epilepsy.
We work collaboratively with world-leading medical and academic institutions on innovative research projects such as those exploring the following important areas:
- Sudden Unexplained Death in Epileptic People (SUDEP), which in turn provides the evidence base for developing educational materials to minimise risk
- Medicinal cannabis trials to help control seizures in children (see information below)
- Potential long-term effects of anti-epileptic drugs (AEDs) on mothers and babies/children during and after pregnancy
- Innovative wearable technology,g. seizure detection and alarm systems, and thermal fabrics monitoring and controlling body temperature for those who experience heat sensitive seizures
- Non-pharmaceutical, alternate and complementary therapies with identified potential to manage seizure activity
- Psychological interventions to enhance quality of life.
There is no doubt that research into epilepsy is underfunded, and therefore under-researched but we are committed to raising funding for this crucial area and advancing evidence-based services that target identified patient needs.
Championing Research into Medicinal Cannabis
Laboratory evidence and clinical studies into medicinal cannabis suggest that it can significantly reduce the severity and frequency of seizures for some children with medication resistant epilepsy. Epilepsy Action is at the forefront of advocating for increased research into this vital area of new hope, and assisting through various government and university constituted Boards and Steering Committees.
Epilepsy Action’s CEO, Carol Ireland is also heavily involved in and passionate about this area, and currently sits on the Australian Advisory Council on the Medicinal Use of Cannabis; the Advisory Board of the Lambert Initiative for Cannabinoid Therapeutics at the University of Sydney; and the Steering Committee for the NSW Government’s Paediatric Epilepsy Trials (Medicinal Cannabis Research).
For 65 years, Epilepsy Action Australia has been at the forefront of partnering and funding research into new interventions and treatments to help improve and save lives.
As a key focus area, we will continue to fund, develop, facilitate, promote and advocate for research on behalf of all people with epilepsy.