CEO’s Blog

New Website and Logo Reflects ‘Take Action’ Approach

09 August 2017

During my 11 years as CEO of Epilepsy Action Australia I have been very lucky to be part of many exciting initiatives, including Purple Day and the launch of the MyEpilepsyKey resource. But I have to say that the unveiling this month of our fabulous new website and logo joins my list of significant highlights.Read More…

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Cannabis Oil and Children with Epilepsy

21 September 2016

I know there was a great deal of upset, especially amongst ‘epilepsy parents’, following comments made in an ABC Brisbane television news item on the evening of 19 September. The segment covered the story of a father who is pleading with the Queensland Government to allow his 8 year old daughter, who has a regressive neurological disorder that causes chronic multiple seizures, access to medicinal cannabis oil while she is in hospital.

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Purple Day 2016

29 March 2016

So another Purple Day has come and gone. I am reflecting on the successes, the highs and the lows, the mixed emotions that were expressed over the past few days.

I remember some years ago when I first heard there was going to be an epilepsy ‘day’ thinking “oh no, not another ‘day’. There are so many already”. As I let the possibility sink in, I actually understood that having an ‘event’ like Purple Day was very right for the epilepsy condition.

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Message to the Australian Health Minister on epilepsy and Medicinal Cannabis

03 December 2015

The Hon Sussan Ley MP
Minister for Health

Dear Minister

I write on behalf of many families in Australia who have children with devastating, medication resistant epilepsy. I also write to you on behalf of adults who have lived for many years with unrelenting seizures that have made it virtually impossible for them to lead a quality life and participate fully in their communities – a right afforded to most of us.

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Voices Behind Medicinal Cannabis – Special Presentation

29 October 2015

On the 27th October I was privileged to stand beside Premier Mike Baird, the Hon. Pru Goward, Minister for Research, and Dr John Lawson in announcing an exciting development in medicinal cannabis treatment for children with severe epilepsy at the Sydney Children’s Hospital.

Later in the day Minister Goward was the first speaker at Epilepsy Action Australia’s special presentation: “Voices behind the issues – Medicinal Cannabis”.

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