Taking an active role in managing your epilepsy through the use of readily available practical tools and resources can help you feel more confident and allow you to better control your symptoms and overall well-being.
The following resources have been refined and updated to ensure they are useful in helping you self-manage aspects of your condition.
The EpiDiary is a personal online diary app that will help you keep an accurate record of your seizures, triggers, sleep, medications and any other information of relevance. Adapted for the Australian community, it is easy to access and use.
Available in a number of different languages, the EpiDiary helps you by:
- sending automatic phone reminders to take your medications
- using photos of your actual pills to help you take the correct medication
- tracking your medication and dosage changes
- alerting you to when a prescription needs to be refilled
- recording seizures, triggers and side effects
- keeping an organised and easily accessible record of your medical history using user-friendly graphics
- automatically synchronising and backing up all information
- allowing you to share your information with your healthcare team.
MedAdvisor is a free medication management app that helps you order and track your medications. It connects you to your local pharmacy and gives you an automatic list of all your medications.
It allows you to:
- Skip the queue – Pre-order your medication ahead of time for easy pharmacy pick-up
- Receive reminders – Alerts you to when you need to take your medication, when to fill a script and when to see your doctor
- Take care of others – Allows you to help family members and friends keep track of their medications.
Click here to register for MedAdvisor.
Seizure Management Plans (SMP) are documents that provide essential information to anyone who may be in a position to assist someone having a seizure – whether that be family, friends, carers, teachers, colleagues or others. A SMP is a practical tool that can be used by all caregivers in all settings to manage seizures, seizure emergencies, treatments and safety.
A SMP includes detailed information about:
- emergency contacts
- seizure and relevant medical history
- safety and supervision needs
- medication instructions (if relevant)
- seizure management.
Having this plan readily available—for example at school or the workplace—can help lessen the impact of seizures and the risk of injury and improve seizure management by others.
If an emergency medication plan is needed, Epilepsy Action Australia can assist with this, as well as offer the necessary training for those who may be required to administer this medication.
We have an online tool where you can create your own SMP. Simply register and follow the instructions.
Epilepsy Action has developed a number of educational resources to help improve knowledge about epilepsy and consequently seizure control and quality of life. Many of these resources are for a general audience while others are targeted at a more specific audience.
E-quip: An Epilepsy Resource for Youth: Developed for teenagers and young adults, this resource covers topics, such as dating, depression, study and work matters and has a number of videos featuring young Australians discussing their personal experiences.
Strong Foundations: This resource is designed to help parents with a child attending mainstream school identify any epilepsy-related learning challenges. It aims to give parents ideas about how to support their child to achieve their potential.
- How epilepsy can affect learning
- Epilepsy management
- Fostering independence
- Learning and participation at school
- Telling others about your child’s epilepsy
- Healthy family relationships.
Psychosocial Well-Being for Adults Living with Epilepsy: Apart from having to manage seizures, many people with epilepsy also have to manage difficulties with memory, social activities, stigma, relationships, employment and driving. Having the right information and direction can make all the difference.
From the Experts – Video Series: We have a series of over 30 videos featuring some of Australia’s leading specialists discussing epilepsy topics of interest and answering common questions. Gain practical advice on everything from diet and sleep to children’s issues like babysitting and sleepovers.
Medikidz: Understanding Epilepsy – a digital comic for children aged between 8-12 years
Being diagnosed with epilepsy at a young age can be a difficult and confusing time, which is sometimes made worse by a lack of appropriate and easy-to-understand medical information.
In partnership with global health education company Jumo, we are proud to bring to you a new digital comic book Understanding Epilepsy based on the experiences of a real-life family. It takes on a superhero type theme as you adventure through the human body to learn all about what’s happening to the body with seizures and epilepsy.
To read the Understanding Epilepsy digital comic – click here
A second Understanding Epilepsy digital comic, with narrative, is now available here