Taking an active role in managing your epilepsy through the use of readily available practical tools and resources can help you feel more confident and allow you to better control your medication, symptoms and overall well-being.
The following resources have been refined and updated over many years to ensure they are useful in helping you self-manage aspects of your condition.
The EpiDiary is a personal online diary app that will help you keep an accurate record of your seizures, triggers, sleep, medications and any other information of relevance. Adapted for the Australian community, it is easy to access and use.
Available in a number of different languages, the EpiDiary helps you by:
- sending automatic phone reminders to take your medications
- using photos of your actual pills to help you take the correct medication
- tracking your medication and dosage changes
- alerting you to when a prescription needs to be refilled
- recording seizures, triggers and side effects
- keeping an organised and easily accessible record of your medical history using user-friendly graphics
- automatically synchronising and backing up all information
- allowing you to share your information with your healthcare team.
MedAdvisor is a free medication management app that helps you order and track your medications. It connects you to your local pharmacy and gives you an automatic list of all your medications.
It allows you to:
- Skip the queue – Pre-order your medication ahead of time for easy pharmacy pick-up
- Receive reminders – Alerts you to when you need to take your medication, when to fill a script and when to see your doctor
- Take care of others – Allows you to help family members and friends keep track of their medications.
Click here to register for MedAdviser.
Seizure Management Plans (SMP) are documents that provide essential information to anyone who may be in a position to assist someone having a seizure – whether that be family, friends, carers, teachers, colleagues or other involved professionals. A SMP is a practical tool that can be used by all caregivers in all settings to manage seizures and seizure emergencies, treatments and safety.
A SMP includes detailed information on:
- emergency contacts
- medical history
- safety and supervision needs
- instructions on medication
- seizure management.
Having this plan readily available—for example at school or the workplace—will help minimise the impact of seizures on daily life and the risk of injury in the event of a seizure.
If an emergency medication plan is needed Epilepsy Action Australia can assist with this, as well as offer the necessary training for those involved in caring or supporting someone with epilepsy.
We have an online tool where you can create your own SMP. Simply register and follow the instructions.
Epilepsy Action has developed a number of educational resources to help increase knowledge about epilepsy and how to improve seizure control and quality of life. Many of these resources are for a general audience while others are targeted at a more specific audience, e.g. designed for young people, children and indigenous communities.
E-quip: An Epilepsy Resource for Youth: Developed for teenagers and young adults, this resource covers topics, such as dating, depression, study and work matters and has a number of videos featuring young Australians discussing their personal experiences.
rEaction: This resource is also aimed at youth with a focus on increasing epilepsy awareness for friends and peers of people with epilepsy.
Issues covered include epilepsy in relation to:
- alcohol and drugs
- fatigue, lack of sleep, stress
- birth control
- playing sport, driving
- study and school.
Strong Foundations: This resource is designed to help parents with a child attending mainstream school identify any epilepsy-related learning challenges. It aims to give parents ideas about how to support their child to achieve their potential.
- How epilepsy can affect learning
- Epilepsy management
- Fostering independence
- Learning and participation at school
- Telling others about your child’s epilepsy
- Healthy family relationships.
Psychosocial Well-Being for Adults Living with Epilepsy: This resource offers practical information on the significant challenges that can affect our psychosocial well-being. Apart from having to manage seizures, many people with epilepsy also have to manage difficulties with memory, social activities, stigma, relationships, employment and driving. Having the right information and direction can make all the difference.
From the Experts – Video Series: Epilepsy Action has produced an extensive series of over 30 videos featuring some of Australia’s leading specialists discussing epilepsy topics of interest and answering common questions. Gain practical advice on everything from diet and sleep to children’s issues like babysitting and sleepovers.
Medikidz: Understanding Epilepsy – new digital comic for children aged between 8-12 years
Being diagnosed with epilepsy at a young age can be a difficult and confusing time, which is sometimes made worse by a lack of appropriate and easy-to-understand medical information.
In partnership with global health education company Jumo, we are proud to bring to you a new digital comic book Understanding Epilepsy based on the experiences of a real-life family. It tells the story of boy with epilepsy called Jonty who meets numerous superheroes as they take him on an adventure through the human body to learn all about what’s happening to his body.
To read the Understanding Epilepsy digital comic – click here
You can also request a free printed copy by providing your contact details and address in the Contact Us form on the right-hand side of this page.