Lisa is a lecturer at the University of Technology Sydney, where she teaches in the genetic counselling program and conducts research on the ethics of genetics and genomics. She has also been a research fellow at Sydney Health Ethics at the University of Sydney and has taught ethics and philosophy in various undergraduate and postgraduate programs.

Jeff has successfully led Crisis Management programs, helping businesses recover from problems, whether in Supply Chain, Sales, or IT. He is a leading communicator and facilitator who enjoys leading workshops and developing strategies for business growth.

Carol serves on numerous government, university, and industry boards and advisory councils, representing the needs of consumers. She has been the CEO of Epilepsy Action Australia since 2006 and is a strong advocate for people living with epilepsy.

Prior to his retirement in early 2016, Roy had international assignments as Director – Finance and Administration International Operations at URS. He first became acquainted with Epilepsy Action Australia in 2011 when tragically, his oldest son George, aged 29 passed away suddenly as result of epilepsy. Since this time Roy and his family have become strong supporters of Epilepsy Action.

Dr JMT has worked in all sectors both internationally and within Australia. She was the former CEO of a national charity, leading one of Australia’s prominent mergers between a national and international charity.  Her Board commitments include being a community member on the NSW Nursing and Midwifery Council. Recently she held the champion role of Volunteer Family Connect a structured social relationships approach that reduces isolation for children and families through the connection with volunteers and home visiting.

David’s daughter Luella was diagnosed with a severe paediatric epilepsy at just 11 weeks of age.  Now 4, Luella continues to struggle for seizure control and has complex special needs as a result of her ongoing seizures.  In recent years, David and his wife Erin have turned their mind to raising awareness and funds to support paediatric epilepsy.

Erin and her family continue to struggle to achieve seizure control for Lulu, and as a result her diagnosis has developed into Lennox Gastaut Syndrome, an equally severe form of epilepsy. Luella, now 4 years old, has complex special needs and requires Erin’s full time care.

Since Luella’s diagnosis, Erin has become a leading advocate for families dealing with childhood epilepsy founding the Lulu Love Project (LLP) and over the past three years has raised close to $500,000 for LLP and Epilepsy Action Australia. Erin’s goal is to continue shining a brighter light on epilepsy through social media and helping to raising essential funds for epilepsy.

Alan’s career in research and consultancy took him from London to Singapore and on to Sydney where he co-founded RFI Global in 2006. Over the last 17 years RFI has grown from a start-up of 2 people to a global brand relied on by the world’s largest banking and technology companies.

Alan’s connection to epilepsy is through his daughter Mila, who has a rare genetic condition that causes seizures. Since learning of her diagnosis Alan has been keen to get involved and support Epilepsy Action in any way he can.

As the international ambassador for SUDEP Action (UK) and an ambassador for Epilepsy Action Australia, Matt is dedicated to raising SUDEP awareness and supporting efforts to reduce epilepsy-related risks.

Matt’s brother, William tragically died from Sudden Unexplained Death in Epilepsy (SUDEP), the leading cause of epilepsy-related premature death, when he was just 22.

Diagnosed with epilepsy four years earlier, William’s death profoundly inspired family members to channel their grief into advocacy. Matt’s mother, Jennifer Preston, produced the booklet Epilepsy and the Young Adult (1990) and co-founded Epilepsy Bereaved, now SUDEP Action, providing vital support to bereaved families.

Matt discusses his brother’s death and its impact on their family in his memoir Big Mouth (2023).

Catherine Alcorn is one of Australia’s most loved entertainers, adored by audiences for her killer voice and wicked sense of humour. In 2018 Catherine made her triumphant USA and Sydney Opera House debut in her most famous role as The Divine Miss Bette, her smash hit show, channelling Bette Midler, winning her the Best Cabaret Production in the 2018 Broadway World Awards.

Catherine provided the entertainment and acted as EMCEE for Epilepsy Action’s Purple Day event in 2021 and is committed to making 2022 even bigger!

Mark is a former Penrith second row forward, and a state and national representative player. Since retiring from the sport in 2000, he has made a name for himself in the media including becoming part of the 2GB on-air team and as a regular panellist on a number of NRL television shows on free-to-air and Fox Sports. In 2000, Mark was awarded the Australian Sports Medal for his contribution to Australia’s international standing in rugby league. In 2013 he received an Order Of Australia medal for ‘service to the sport of Rugby League football, and to the community through a range of charitable organisations’. Mark and his wife Meagan have five children.

Luke has managed to create a happy, healthy and financially successful life within education, business and investing. He represented NSW in several sports, played professional Rugby League and attained University qualifications now being regarded as one of the most respected school educators in the system today. Luke has taken his skills and futurist view to improving some of the biggest concerns in education and the world today.

Cr Russell is qualified as a Child and Family Practitioner and a school teacher and has degrees in Education and Child and Family Studies. Working in Logan’s community sector for a decade, Cr Russell has worked closely with community organisations on programs, coordinated strategies and events to help local families connect with their community and stay healthy. Her goal is to make Logan famous as the best city in Australia to raise children.

Paul hid his epilepsy for years as he moved on to work as a soccer commentator. But his secret was revealed in the most public way possible – he had a seizure while broadcasting a live interview in 2001. Shortly after he underwent brain surgery to stop the seizures. The invasive treatment involved removing a piece of Paul’s brain the size of two matchboxes. Since the successful operation, he hasn’t had a seizure, although his short-term memory has been affected. Paul who now works as a motivational speaker and sports commentator, credits Epilepsy Action Australia with providing invaluable support through his ordeal. He takes every opportunity to raise the profile of epilepsy and our organisation.

Malinda strives to educate her students via Pranayama (breathwork), Asana (postures) and Meditation with a strong focus on Philosophy, to help them live a happier and healthier life.

Having a background in the Performing Arts, Malinda uses her experience with voice and movement to guide her students into a space where their mind and body feels safe, nourished and present.

He has spearheaded a campaign to create a statue of the most important racial discrimination moment in Australian sporting history – the time indigenous AFL player Nicky Winmar stood up to racist abuse, pointed at the colour of his skin and declared, “I’m black, and I’m proud!”

He has fought back against Australian supermarkets and their short-term plastic promotions with the Future Landfill campaign, which saw Woolworths ‘Lion King Ooshies’ campaign put firmly in the crosshairs, and led to them creating an environmentally promotion in its place.

Alex’s book, The Right-brain Workout (co-authored with advertising and business guru Russel Howcroft) was a best seller for Penguin Random House in 2019.
He has also created advertising campaigns that have run all around the world, raised hundreds of thousands of dollars for a range of charities.

Alex is also the father of the wonderful Lila, who was diagnosed with Epilepsy at the age of 6. Since that time Alex, has been a vocal and proactive supporter of Epilepsy Action Australia and continues to do all he can to raise much needed funds for epilepsy research and support.

Alex firmly believes we all have the ability to change the world. You just have to do it!

Jyotsana describes herself as motivated and determined, consistently striving towards goals in her life not only as an athlete, but also in her previous work as an interior architect. In 2016, she decided to follow another goal and is currently studying for a Bachelor of Science specialising in osteopathic medicine at Victoria University. Over the years Jyotsana has competed in triathlon and ironman events, and in 2014 was selected to represent Australia at the ITU World Championship Long Course Triathlon in Weihai, China. Jyotsana has recently embarked on some overseas cycling trips to Europe, New Zealand, Mauritius and Vietnam, where she’s travelled solo with just a backpack on her back. Whilst juggling university with a pretty strict training regime, Jyotsana enjoys squeezing in time for family and friends, and some of Melbourne’s finest art, design and food!