Epilepsy Action Australia has a passionate team of professional staff, who work hard every day to fundraise, provide our nationwide specialist services, and support our core functions. These individuals are the strength and soul of the organisation and strive to make a real and positive difference to those with epilepsy and the people who care for them.
We are also incredibly lucky to have many dedicated volunteers who give their time and assistance to help us in various areas across the organisation.
Epilepsy Action is committed to attracting skilled and motivated employees and developing their knowledge and capabilities in order to provide the very best quality services and support to enable a brighter future for all those affected by epilepsy.
We encourage an organisational culture that embodies our shared values, and Code of Professional Conduct, which is a set of guidelines for the ethical conduct of staff, volunteers and contractors of Epilepsy Action.
We also strictly adhere to the national standards for volunteer involvement as determined and outlined by Volunteering Australia
Directors of the Board
Epilepsy Action Australia is a company limited by guarantee and is governed by an independent Board of Directors whose individuals have expertise in wide range of fields and industry including financial, nursing, law, digital operations, marketing and information technology.
The Board is responsible for identifying and implementing the organisation’s strategic direction and goals and oversees adherence to the Epilepsy Action’s vision, mission and values. A number of our Board members have personal experience of epilepsy.
Alistair Daly (appointed 13 March 2017)B.A., MIRM, MBA
Alistair Daly is a leading risk and insurance executive with experience in developing and implementing risk and insurance strategies aimed at embedding global best practice in enterprise risk management across a broad range of geographic regions.Special EAA Responsibilities: Chair of the Finance, Audit, Compliance and Risk Committee
Employed by Lendlease Corporation as the Group Risk and Insurance Manager, Alistair is responsible for the implementation of the global risk and insurance strategy across the Group’s regional businesses. This role provides strategic direction, technical advice and support on risk mitigation, insurance programme development and management and business continuity & crisis management expertise to the Group’s operations. Alistair holds a Bachelor of Arts from University of Sydney, a Master of Insurance & Risk Management and a Master of Business Administration from Deakin University. Based in Sydney, Alistair has worked extensively through Europe, North America and the Asia Pacific regions.
Lisa Dive (appointed 13 November 2015)PH.D, M.Phil(Med), BA(Hons), GAICD
Lisa Dive is trained as an analytic philosopher, worked in the non-profit sector for over a decade, and is now a bioethics academic. She has particular interests in finding ethical approaches to complex challenges in the healthcare sector, as well as health policy and the non-profit sector more broadly.Read More
Lisa is a lecturer at the University of Technology Sydney, where she teaches in the genetic counselling program and conducts research on ethics of genetics and genomics. She has also been a research fellow at Sydney Health Ethics at the University of Sydney, and has taught ethics and philosophy in the various undergraduate and postgraduate programs. Previously, she managed a team of policy and advocacy staff at The Royal Australasian College of Physicians and has also worked as an organisation development consultant, helping non-profit sector clients respond to organisational and governance challenges. Lisa graduated from the AICD Company Directors Course in 2022.
Jeff Fryer (appointed 30 October 2023)MBA, GAICD
Jeff is a senior manager in the Medical Device & Pharmaceutical industry, currently leading Commercial Excellence teams at Medtronic. Prior to Medtronic, Jeff had a long career at Roche Pharmaceuticals, leading IT teams and projects locally and globally. Jeff’s passion is to execute organisational transformation initiatives to drive change and improve business performance.Read More
He has also had the opportunity to successfully lead Crisis Management programs, helping businesses recover from problems, whether it be in Supply Chain, Sales or IT. Throughout his career Jeff has been recognised as a leading communicator and facilitator, he enjoys the opportunity to lead workshops, helping teams develop strategies and initiatives that help their businesses grow. As a graduate of the Australian Institute of Company Directors, Jeff brings a desire to help EAA grow and thrive through application of Risk Management and Governance.
Jeff’s son Jake (Born 2000) has a significant intellectual disability and was diagnosed with Epilepsy – Absence Seizures in 2022, so he and wife Jane and daughter Emma, have recent experience dealing with a diagnosis. Jeff’s family are very connected to the National Disability Insurance Support scheme and other support mechanisms and are passionate about helping people navigate their journey through it.
Carol Ireland (appointed 29 June 2009)Dip Reh. Couns.; FAIM; MFIA
Carol Ireland joined Epilepsy Action Australia as CEO in March 2006 and became a Director in 2009. She has worked in the not-for-profit human services sector for a period spanning more than 35 years and holding a variety of executive positions including general management, operations, service delivery, marketing and fundraising roles.Special EAA Responsibilities: Managing Director and Chief Executive Officer, Company Secretary, Member of the Governance Committee
Carol currently serves on the federal government’s Australian Advisory Council on the Medicinal Use of Cannabis, the Advisory Board of the Lambert Initiative for Cannabinoid Therapeutics at the University of Sydney, and the Steering Committee for the NSW Government’s Paediatric Epilepsy Trials (Medicinal Cannabis Research). She is a founding director of the Medical Cannabis Council, a peak industry body. Carol is a strong and active advocate for people living with epilepsy.
Martin Lakos (appointed 07 December 2020)
Martin Lakos has been one of Macquarie’s leading media spokespeople for over 15 years and public speaker for over 6 years. He is a regular economic and market commentator on all major Australian networks, CNBC and Bloomberg. He frequently gives presentations or facilitates panel discussions at conferences around Australia, providing a personalised approach to the key issues facing a specific industry group or business.Read More
Martin has worked his entire professional life in the securities industry, starting in 1979 on the Sydney ASX trading floor as a telephone clerk and seconded to broking firms in London during the 1980s. He joined Macquarie in 1994, where he has since held roles in Macquarie Equities Institutional sales, headed the Asia desk and more recently in Macquarie Wealth Management where he became a Division Director in 2006. Martin is also a senior investment adviser within the Macquarie Private Bank. Martin has a family member living with epilepsy.
Roy Marrett (appointed 25 July 2016)
Roy Marrett has had a long career in senior finance roles with URS Australia – a provider of engineering, construction and technical services (acquired by AECOM).Special EAA Responsibilities: Member of the Finance, Audit, Compliance and Risk Committee
Prior to his retirement in early 2016, Roy had international assignments as Director – Finance and Administration International Operations at URS. He first became acquainted with Epilepsy Action Australia in 2011 when tragically, his oldest son George, aged 29 passed away suddenly as result of epilepsy. Since this time Roy and his family have become strong supporters of Epilepsy Action.
Jayne Meyer Tucker (appointed 30 October 2023)Ph.D Philosophy
Jayne Meyer Tucker (DrJMT) is a decision-making expert dedicated to helping humans and organisations make better decisions. As an experienced Non-Executive Director (NED) from across all sectors Jayne asks the insightful questions that bring lateral thought to decision making at all levels. As a person living with epilepsy, she represents her lived experience, both personally and professionally.Read More
DrJMT has worked in all sectors both internationally and within Australia. She was the former CEO of a national charity, leading one of Australia’s prominent mergers between a national and international charity. Her Board commitments include being a community member on the NSW Nursing and Midwifery Council. Recently she held the champion role of Volunteer Family Connect a structured social relationships approach that reduces isolation for children and families through the connection with volunteers and home visiting.
David Oudshoorn (appointed 30 October 2023)
David is a banking and funds management executive with over 20 years of experience in Australia and the UK and leads the NSW/ACT business of MaxCap Group, an institutional fund manager focused on providing debt and equity solutions for large scale real estate projects.Read More
David’s daughter Luella was diagnosed with a severe paediatric epilepsy at just 11 weeks of age. Now 4, Luella continues to struggle for seizure control and has complex special needs as a result of her ongoing seizures. In recent years, David and his wife Erin have turned their mind to raising awareness and funds to support paediatric epilepsy.
Erin Oudshoorn (appointed 30 October 2023)
Erin’s thirteen year career in residential Real Estate Sales and Buyers Agency, covered both Sydney and Melbourne before her life changed forever when her daughter, Luella, at only 11 weeks of age was diagnosed with severe paediatric epilepsy called Infantile Spasms.Read More
Erin and her family continue to struggle to achieve seizure control for Lulu, and as a result her diagnosis has developed into Lennox Gastaut Syndrome, an equally severe form of epilepsy. Luella, now 4 years old, has complex special needs and requires Erin’s full time care.
Since Luella’s diagnosis, Erin has become a leading advocate for families dealing with childhood epilepsy founding the Lulu Love Project (LLP) and over the past three years has raised close to $500,000 for LLP and Epilepsy Action Australia. Erin’s goal is to continue shining a brighter light on epilepsy through social media and helping to raising essential funds for epilepsy.
Alan Shields (appointed 30 October 2023)
Alan Shields is an experienced entrepreneur and business leader with a proven track record of building and growing products and businesses. He has a background in science, with a BSc in Physics from Birmingham and Bordeaux universities.Read More
Alan’s career in research and consultancy took him from London to Singapore and on to Sydney where he co-founded RFI Global in 2006. Over the last 17 years RFI has grown from a start-up of 2 people to a global brand relied on by the world’s largest banking and technology companies.
Alan’s connection to epilepsy is through his daughter Mila, who has a rare genetic condition that causes seizures. Since learning of her diagnosis Alan has been keen to get involved and support Epilepsy Action in any way he can.
Erica Siu-Gregan (appointed 20 May 2019)
Erica has worked in the hospitality industry for more than 20 years and is currently the owner and Managing Director of the Gregan Group, a collection of cafe, restaurants and catering services. Erica brings both a business and personal perspective to Epilepsy Action Australia.Special EAA Responsibilities: Chair of the Board
When her son Max developed epilepsy at age three, she established the George Gregan Foundation to raise much needed funds to support research into childhood epilepsy and to design and build outdoor interactive playgrounds at children’s hospitals throughout Australia. In addition to her business acumen, Erica’s skill set includes fundraising, event planning and developing key partnerships.