The reactions of others to your seizures can often have more impact than the seizures themselves.
How others might react may also influence whether you choose to talk to others about your epilepsy.
Parents struggle seeing their kids having seizures or being unwell because they want to prevent anything bad from happening to their child; it’s natural as a parent to feel this way. Some parents feel upset or guilty or think they’ve failed you; others may get angry about how unfair it seems. Some parents may also feel helpless as they cannot predict or prevent a seizure from happening.
This may lead to some parents being very protective, sometimes unintentionally overprotective and restrictive. It’s all very individual, and each child-parent relationship is unique. Other parents may be more encouraging in letting their children have increasing independence as they mature.
Seeking out support groups can help connect with others in the same situation and help them deal with the reality.
It’s a matter of finding a balance, and talking to your parents if you feel they are being too overprotective, or not being supportive enough.
Click on the play buttons to hear people with epilepsy talk about other’s reactions.
To hear Sarah’s ‘Hey World’ message click on the video.
You are beautiful
