Advocacy for People Living with Epilepsy
Epilepsy Action Australia is the leading national organisation advocating for the rights, needs, and wellbeing of people living with epilepsy, as well as their families and carers.
We work across health, disability, education, and community systems to drive practical, evidence‑based change. Our goal is simple: to improve access, inclusion, and quality of life for everyone affected by epilepsy.
Our advocacy is shaped by real experiences — from people living with epilepsy, from our frontline support services, and from ongoing conversations with communities and professionals. This ensures the changes we push for are realistic, sustainable, and grounded in what people actually need.
Every week, we support individuals with personalised epilepsy advocacy. At the same time, we influence national policy and systems to create long‑term, meaningful change across Australia.
A National Voice for Change
We represent the collective voice of Australians living with epilepsy by working closely with government, policymakers, and key decision‑makers. Our goal is to build systems that understand epilepsy and respond to it effectively.
We focus on improving support across major areas of life, including:
- Healthcare and hospitals
- Education and schools
- Employment and workplaces
- Transport and driver licensing
- Disability and community services
By strengthening these systems, we work to reduce stigma and discrimination so people with epilepsy can participate fully in everyday life.
Our Advocacy Priorities
1. Lived Experience Driving System Change
We listen to the experiences of people living with epilepsy, their families, and carers. These insights help us identify national issues and shape policy reform, ensuring our advocacy reflects real needs and real challenges.
2. Improving Quality of Life and Addressing Unmet Needs
We push for inclusive policies, accessible services, and fair systems that improve outcomes for people with epilepsy. This includes helping mainstream services better understand and respond to epilepsy.
Driving Better Outcomes for People with Epilepsy
Epilepsy Action Australia works with the Australian Government, peak bodies, and national organisations to create long‑term, sustainable change.
Our key advocacy areas include:
- Better access to services, epilepsy medications and treatments
- Increased funding for epilepsy research and support services
- Fair, consistent, evidence‑based driver licensing regulations
- Eliminating workplace and community discrimination
Through this work, we strengthen system capability and promote equity, safety, and inclusion.
Supporting an Inclusive Australia
We are working toward an Australia where people living with epilepsy are understood, supported, and empowered to live full, meaningful lives.
By combining advocacy, policy reform, and direct support services, Epilepsy Action Australia continues to lead national efforts to improve outcomes for all Australians affected by epilepsy.
Contact Epilepsy Action Australia today to discuss your needs on
1300 37 45 37 (1300 EPILEPSY) or [email protected]
