Research Projects

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Treatments cannot improve without medical research. Clinical trials are necessary to test new therapies and to develop better ways of using recognised treatments. People with epilepsy are in a position to help others through participating in medical research that can lead to valuable treatments.

Participating in a clinical trial is a significant commitment and you should have a good understanding about the study and clinical trials before committing to participate in one.

If you want to learn about clinical studies in general, click here.

  1. To find a trial click here and type in “epilepsy” and press ENTER. This will list any current studies recruiting or recently completed.
  2. To find Australian trials, follow step 1 above, then click the tab “On Map”, then click Australia on the map and scroll down for more specific locations.

Current and ongoing research projects include:

Australian Pregnancy Register

The Australian Pregnancy Register for Women on Antiepileptic Medication

  • Planning a pregnancy, currently pregnant or recently given birth?
  • On an antiepileptic medication with or without a diagnosis of epilepsy?
  • Have a diagnosis of epilepsy and not on antiepileptic medication?

If your answer is yes to two of the three questions above, you are eligible for this study.

In a bid to determine the impact antiepileptic medications (AEDs) have on pregnant women and their babies, This ongoing international study is to help determine if certain AED’s or combinations of AED’s are safer than others, which may offer greater seizure protection during pregnancy, and measure the rate of birth defects compared to the general population.

The aim is to have as many women as possible enroll to provide a broader base of information. This is an observational study consisting of 1-4 brief telephone interviews and does not require any change to your current medication regime or treatment.

If you would like to contribute to the collective knowledge of AEDs and pregnancy please register here

Recruitment: Ongoing

  
PELICAN : Paediatric Epilepsy Lambert Initiative Cannabinoid Analysis

Epilepsy Action Australia has joined forces with the Lambert Initiative, Sydney University to further our understanding of the benefits and issues faced by parents who would like to, have previously or are currently administering various forms and formulations of medicinal cannabis to their child with epilepsy.

Are you the parent or guardian of a child aged 0–16 with epilepsy?

  • Do you currently treat the epilepsy with cannabis products?
  • Or have you previously tried cannabis products?
  • Or have you never used cannabis products?

We would like to interview you about your experiences and opinions towards medicinal cannabis use for your child’s epilepsy.

Interviews are strictly confidential, and can be conducted in your own home by our trained researchers, or at our research centres in Sydney or Brisbane.

For those currently using cannabis products, we will analyse your product for cannabinoid content and you will have the option to find out the results. This research will help us to better understand key issues and obstacles families face in the decision to use or not use cannabis for their child’s epilepsy, and to identify the types of cannabinoids present in artisanal oils and tinctures being used to treat seizures in these children.

To register your interest, or for more information, please contact:

NSW:
Email: lambert.pelican@sydney.edu.au
Phone: (02) 9351 0746

QLD:
Email: lambert-QLD.pelican@sydney.edu.au
Phone: (07) 3069 7014

Recruitment: Open

  
SEISMIC: Sydney Epilepsy Incidence Study to Measure Illness Consequence

Epilepsy Action Australia and The George Institute for International Health has undertaken a major epidemiological research project to measure the impact and incidence of epilepsy.

This study known as the Sydney Epilepsy Incidence Study to Measure Illness Consequences (SEISMIC) has explored the incidence, psychosocial impact and the household economic burden of epilepsy in a large population. It is the first time this kind of study has ever been conducted in Australia. The new information it uncovers will bring many benefits to people living with the condition.

This multi-centre three-year study recruited and followed-up people with newly diagnosed epilepsy living or being treated in the Sydney South West Area Health Service. The study aims to identify modifiable factors that enhance resilience and reduce vulnerability to the socioeconomic impact of epilepsy in an Australian population.

The results of this research will provide key data to inform the design and development of EAA services so we ensure real and positive impact to the daily lives of people living with epilepsy. At a broader level, it will enable government and healthcare practitioners to make more informed decisions about policy, funding, and management.

Recruitment: Closed

  
Other Research

The following hospital and university based groups conduct epilepsy-related medical research in

Australia.