Telling friends or family that you have epilepsy can feel like a big deal, but there will be times when it’s the right move — especially so they know what to do if you ever have a seizure around them.
Most people don’t know much about epilepsy, but they’re usually understanding once they get the chance to learn. Some might be surprised at first, and that’s okay — it doesn’t mean they’re judging you.
When you decide to tell someone, keep it simple and casual. You don’t need to give a huge explanation. People often need a bit of time to take in new information, and they’ll ask questions if they want to know more. Try to stay relaxed, even if you’re nervous — it helps the conversation feel easier for both of you. People react in different ways:
- Sometimes people do not know how to react
- Some may want to ask questions to get a better understanding of what epilepsy is and how it affects you, and how they can support you if you have a seizure
- Others may be worried if they will cope if you were to have a seizure. In such instances, ask if they have any specific questions.
- You can keep your explanation short and clear — just the basics of how they can help.
- Some people might change the topic because it makes them feel uncomfortable. If that happens, keep things light and reassure them you’re still you — you just happen to have seizures sometimes.
If someone reacts in a way that annoys you or hurts your feelings, it’s okay to say so. Being honest about how you feel can actually make things easier for both of you.
Hear Dr Maria Kangas, Clinical Psychologist, talk about strategies for telling others about your epilepsy.
Telling Others
