28 July 2026
At yesterday’s Brisbane hearing of the Senate Committee Inquiry into Epilepsy in Australia, several families shared the heartbreaking experience of losing a child to Sudden Unexpected Death in Epilepsy (SUDEP). We acknowledge the profound grief and life-changing impact these losses have had on these families.
During the hearing, one parent spoke about important tools available in the UK through SUDEP Action and called for similar resources to be available in Australia. It is important for healthcare professionals, people living with epilepsy, and their families to know that these resources are already available here in Australia through Epilepsy Action Australia.
The SUDEP and Seizure Safety Checklists, developed by SUDEP Action in the UK and adapted for the Australian context by Epilepsy Action Australia, are designed to support discussions between healthcare professionals and people living with epilepsy about individual risk factors and strategies to reduce risk. Adult and paediatric versions are available, and the checklists are free, evidence-based, and easy to use.
Importantly, the checklists can also be administered by Epilepsy Action Australia’s Specialist Epilepsy Nurses (Registered Nurses), who can support people with epilepsy and their families to better understand individual risks and develop strategies to improve seizure safety. If you would like to discuss the checklist or arrange support, contact the National Epilepsy Line on 1300 37 45 37 to speak with a Specialist Epilepsy Nurse.
Awareness, education, and open conversations about risk are critical. Let’s ensure that every Australian living with epilepsy, and every healthcare professional supporting them, knows these important resources are available now.
Learn more about the SUDEP and Seizure Safety Checklists: https://www.epilepsy.org.au/sudep-checklist/
