What an incredible journey it’s been! The Epilepsy Action Awards have officially wrapped up, and we couldn’t be more grateful for the amazing support and enthusiasm from our community. When we launched this campaign, our goal was to recognise and celebrate the remarkable individuals who make a positive difference in the lives of those living with epilepsy. Thanks to you, we’ve not only achieved that goal but exceeded all expectations.
Led by Purple Day Founder Cassidy Megan, the campaign kicked off with a heartfelt video that truly set the tone – one of compassion, awareness and community spirit. From that moment on, nominations poured in, sharing stories of courage, dedication and unwavering support. It’s been incredibly inspiring to see so many heroes acknowledged – from healthcare professionals and carers to advocates and individuals living with epilepsy who are making a real difference.
The Epilepsy Action Awards weren’t just about celebrating achievements but also about bringing people together. By sharing stories and highlighting the efforts of these incredible individuals, we’ve witnessed a ripple effect of positivity and awareness spreading right across our community. Keep reading for some powerful nomination stories.
Superstar Award Winners
The winners of the Superstar Awards were Danielle Heaven & Ella Meredith, nominated by Elizabeth Berrell.
Elizabeth said: “Danielle Heaven and Ella Meredith are the creators and founders of the Australian Women with Epilepsy (AWE) Charity and Online Support Groups. Their vision is to connect and improve the quality of life, mental health and services for all women living with epilepsy in Australia and eliminate stigma associated with epilepsy within the wider community.
AWE provides a safe, supportive space where women can discuss their unique challenges and needs. They are advocates for women living with the condition and recognise that women require different avenues to support their health, especially with respect to hormonal changes, pregnancy and menopause. AWE is dedicated to connecting every woman living with epilepsy within Australia, facilitating vital online and face-to-face peer support groups and networks.
In 2022, AWE launched their Kickstart The Conversation (KTC) campaign, aimed at breaking the stigma around epilepsy by providing practical tools and resources to empower people with epilepsy, employees, managers, employers, friends, family and partners to have conversations about epilepsy. Their group has ultimately made many women around Australia feel less alone in living with epilepsy and provided support to so many, which has led to better management of the condition and a greater sense of independence.”
Individual Living With Epilepsy Winner
Nominated by Mya Sally, Georgia Gentle was the winner of the Individual living with Epilepsy Action Award.
Georgia wrote: “Hi, I’m Georgia, a 21-year-old from Mildura. My journey has been filled with challenges, but I’ve always believed in the power of resilience and hope. At the age of 18, I was diagnosed with epilepsy after experiencing my first seizure in a grocery store, an experience that left me feeling shocked, fearful and uncertain about my future.
I had always dreamed of becoming a police officer, driven by a desire to make a difference after enduring a difficult childhood marked by domestic violence and neglect. Despite these challenges, I pursued my education, volunteering, and community work with passion, even while navigating the impact of epilepsy. Sharing my story at conferences, schools, and in magazines has not only helped me process my own struggles but also allowed me to raise awareness and challenge the stigma associated with epilepsy.
I am now studying a Bachelor of Laws, working at a hospital to educate others about seizures, and remain committed to advocating for a positive future for young people. I believe that having epilepsy does not mean weakness; it means being a warrior who faces an unseen battle every day with strength and courage.”
We were so overwhelmed with responses that we’d like to share more snippets from other nominees.
Dianne Hayward was nominated by her daughter, Malinda Hayward. Malinda wrote: “My mum, Dianne, has been my biggest supporter since I was diagnosed with Epilepsy. She has helped me when I’ve had seizures, has accompanied me to appointments so I don’t forget anything, and is constantly doing her own research on Epilepsy to better understand the illness and symptoms. She is a SUPERSTAR and I couldn’t be more thankful for her!”.
Eileen Jacobs was nominated by her daughter Kylie Jacobs. Kylie wrote: “I nominate my mum for her outstanding role as my supporter and carer. Since I was diagnosed with catamenial epilepsy at 28, she has been by my side, helping me through every challenge, including being my driver and carer. As a single mum with no transport options, she takes my child to school daily and supports me through difficult times. My mum’s strength, resilience, and unwavering support mean the world to me, and I truly don’t know where I’d be without her.”
Hayley Miller-Gilich was nominated by Carolyn Howard. Carolyn wrote: “Haley, a lived experience counsellor, has been an incredible support during my journey with epilepsy. From our first conversation, her warmth, understanding, and personal insights gave me a profound sense of relief. Haley shared her own experiences, helping me recognise triggers and empowering me to regain my independence. She encouraged me to focus on my passions rather than my limitations, showing me that while epilepsy is a part of my life, it doesn’t define me. Her empathy, wisdom, and encouragement made a world of difference, and I am so grateful for her guidance.”
Lizzie Ambrose was nominated by Cameron Pickford. Cameron wrote: “Lizzie’s journey with epilepsy began at six years old and has been marked by resilience and advocacy. Despite experiencing a traumatic brain injury that reawakened her epilepsy, Lizzie has dedicated herself to raising awareness and supporting others. She became involved in epilepsy-awareness activities, hosted events, and participated in the National Walk for Epilepsy in Washington D.C. After moving to Australia in 2015, Lizzie pursued a postgraduate degree in Public Health and became a certified yoga teacher, using yoga as a tool for epilepsy management. Her advocacy includes hosting inclusive events, such as a Purple Day afternoon tea with Auslan resources, and volunteering at the Princess Alexandra Hospital’s brain injury rehabilitation unit, where she teaches accessible yoga. Lizzie’s fearless commitment to advocacy has inspired many, and she continues to break stigma and build connections within the epilepsy and brain injury communities.”
As we look back on the Epilepsy Action Awards, we are truly moved by the strength, resilience and compassion displayed by so many within our community. Each nomination, each story shared, and every word of support has reinforced just how remarkable our epilepsy community truly is. The awards have not only celebrated individual achievements but have also brought people together, fostering a deeper understanding and a sense of belonging.
To every nominee, supporter, and storyteller – thank you from the bottom of our hearts. Your courage to share your journey and your commitment to raising awareness have made an incredible impact. You are the reason why these awards matter, and your stories will continue to inspire us all. We are so proud of our community and grateful for your unwavering support. Together, we are breaking down stigma and building a future where no one feels alone on their epilepsy journey. Thank you for being a part of this powerful and uplifting campaign.
