Meet Ember

20 February 2026

Meet Ember At just 10 months old, Ember began experiencing seizures that caused her to lose important development skills, including crawling and babbling. After numerous hospitalizations and treatments, Ember received a heart-breaking diagnosis of KCNT1, an extremely rare condition with only 300 known cases worldwide. Ember will be turning 5 this March, she continues toRead More…

20 February 2026

Beau’s journey Beau’s journey with epilepsy began with what seemed like innocent “staring episodes”. At the time, they were dismissed as fatigue or even post-COVID symptoms. But when his parents found him unresponsive in his highchair, they called an ambulance. Emergency responders witnessed another “staring episode” while in transit, leading to the revelation that BeauRead More…

20 February 2026

Introducing Austy Since being diagnosed with epilepsy at a young age, Austy’s journey has been one filled with courage and resilience. At four years of age, he began the ketogenic diet which, combined with medication, has helped him to lead a more stable life. While Austy still faces occasional absence seizures, these changes have meantRead More…

20 February 2026

💜Meet Margot💜 At just 2.5 years of age, Margot Daisy faces her battle with KCNQ2-linked epilepsy head-on. Her journey began with seizures striking at only 24 hours old. Despite her parents’ concerns, nurses initially brushed off the signs, attributing them to “mucus.” However, Margot’s parents persisted until a paediatrician witnessed a seizure and rushed herRead More…

20 February 2026

💜Meet Ash💜 “Purple Day means a lot to our family. My daughter Ash was a bright and bubbly girl until she was diagnosed with epilepsy and her life changed forever. She experienced many types of seizures: absent, tonic clonic, gelastic, focal, generalised, myoclonic, atonic and non convulsive status epilepticus. She was also diagnosed with encephalitisRead More…