Celebrating 25 Years of Progress: The Australian Pregnancy Register’s Impact on Women with Epilepsy

29 October 2024

Since its establishment in 1999 by a dedicated team led by Prof. Frank Vajda, the Australian Pregnancy Register has been an essential resource for understanding the effects of antiseizure medications on pregnant women with epilepsy. Prof. Terry O’Brien, Prof. Cecilie Lander, Janet Graham, Alison Hitchcock, Emeritus Prof. Mervyn Eadie, and Prof. Piero Perucca have alsoRead More…

16 October 2024

MEDIA RELEASE 16 October 2024   Wednesday 16 October 2024 – In Australia, 170 people die every year from Sudden Unexpected Death in Epilepsy (SUDEP).1 This occurs when an otherwise healthy person living with epilepsy dies suddenly and prematurely, with no identifiable cause of death.1 SUDEP occurs in approximately 1 in 1,000 adults with epilepsyRead More…

20 March 2024

MEDIA RELEASE 20 March 2024   ANNOUNCEMENT OF MEDICAL ADVISOR TO EPILEPSY ACTION AUSTRALIA   DR KAITLYN PARRATT, neurologist and epileptologist, has been appointed the Medical Advisor to Epilepsy Action Australia. This appointment formalises and strengthens the current working partnership that Dr Parratt already has with the organisation. Dr Parratt is also Vice President ofRead More…

29 February 2024

RELEASE DATE: 29 February 2024 ‘Make March Purple’ to turn things around for epilepsy Every 33 minutes a life is turned upside down by epilepsy, a neurological condition that can affect anyone at any time. This March, Australians will join footballing legend Wally Lewis to turn the nation purple and change lives. “I wish I’dRead More…

05 December 2023

Registrations now open In December, Epilepsy Action Australia launched a very special program in Greater Hobart providing vital social and emotional support to children with epilepsy and their families. Children registered for the Ted-E-Bear Connection program will be posted a soft, beautiful, cuddly teddy-bear to be a comforting friend when they are struggling with sadness,Read More…

05 December 2023

Delivery by Telehealth to ensure equal access in city and regions The call is out for South Australian children with epilepsy to enrol in a life-changing program launched statewide by Epilepsy Action Australia in November. ‘Strong Foundations’ will provide intensive, personalised support from specialist epilepsy Registered Nurses to children and their families, aiming to helpRead More…

30 November 2023

Comfort and essential support services on offer The call is out for children living with epilepsy and seizures from Greater Geelong to take part in a heartwarming new program launched by Epilepsy Action Australia in October. Each child registered for the program will receive an exciting free gift in the mail – a beautiful, cuddly,Read More…

29 November 2023

New Leadership for the Board of Epilepsy Action Australia There has been a ‘changing of the guard’, but unwavering commitment and resolve continues for pursuit of optimal outcomes for those living with epilepsy Following its Annual General Meeting last month, the Board of Epilepsy Action Australia has selected a new leader as Chair of its BoardRead More…

20 November 2023

November 2023 Epilepsy Action Australia announces the appointment of five new board members Strengthening their Board with strong commercial expertise partnered with lived experience of epilepsy. Epilepsy Action Australia proudly announces the appointment of five new non-executive directors to the not-for-profit board of directors. New board members Jeff Fryer, Jayne Meyer-Tucker, Alan Shields, and DavidRead More…

29 March 2023

  New study reveals gaps in Australians’ understanding of epilepsy   • New research reveals that 25% of Australians do not know the specifics of epilepsy as a health condition. • One third of Australians (30%) express interest in learning more about epilepsy. • 60% of Australians are not aware of drug resistant epilepsy, includingRead More…

24 February 2021

Sydney Opera House lights up purple to raise awareness for Epilepsy Action Australia Purple Day for Epilepsy Awareness – March 26, 2021 This March, for the first time ever, the Sydney Opera House will light up purple for Epilepsy Action Australia on Purple Day to raise awareness for epilepsy. Every year, Epilepsy Action Australia worksRead More…

03 December 2020

FROM OUTRAGE TO RELIEF, AS TIKTOK RELEASES NEW FEATURE TO AVOID SEIZURE TRIGGERS RELEASE DATE: 26 November 2020 Epilepsy Action Australia is delighted that TikTok have announced a new feature to avoid triggering seizures. TikTok personally wrote to the CEO, Carol Ireland, of Epilepsy Action Australia to advise that they are making TikTok more accessibleRead More…