30 June 2020
As users post sick videos faking seizures and deaths, Epilepsy Action Australia calls for a ban and apology from TikTok. Australia’s leading epilepsy support organisation has slammed a horrifying TikTok trend that features users faking seizures and even deaths. In TikTok’s ‘seizure challenge,’ young people pretend to suffer or die from a fit, accompanied byRead More…
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17 June 2020
Australian helpline launched for people living with epilepsy An Australian-first telephone and email service to support people living with epilepsy and their families has been launched today by Epilepsy Action Australia, the country’s longest serving provider of education and support services to people with epilepsy. The Epilepsy Nurse Line, which is available from 9am toRead More…
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17 June 2020
FORGOTTEN CONDITION REMEMBERED Epilepsy Action Australia is delighted with Greg Hunt’s commitment to further support a long neglected condition. The announcement this week by The Hon. Greg Hunt, Minister for Health that the government has allocated $20million dollars to further support people living with epilepsy builds on an initiative carefully planned and developed by EpilepsyRead More…
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17 June 2020
Do you know what to do if someone has a seizure? Purple Day for Epilepsy Awareness – March 26, 2019 For Purple Day 2019 (March 26) people with epilepsy are encouraging the Australian community to watch a short video illustrating the basics of seizure first aid in order to reduce the fear they may experienceRead More…
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17 June 2020
Heartbroken families applaud launch of new clinical tool to prevent premature epilepsy deaths Sudden Unexpected Death in Epilepsy (SUDEP) Action Day, October 23 8 years ago, Anny Marrett received a phone call that no parent should have to experience. “When Roy and I got a call on Monday morning that George had not turned upRead More…
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17 June 2020
Ground-breaking medicinal cannabis and epilepsy website helps Australians living with epilepsy make informed decisions. A new website aims to help thousands of Australians living with epilepsy, particularly those with devastating medication resistant types, make informed choices when it comes to medicinal cannabis. Launched by Epilepsy Action Australia, the leading provider of epilepsy support and informationRead More…
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17 June 2020
250,000 Shades of Purple: Epilepsy does not look the same for everyone Purple Day for Epilepsy Awareness – March 26, 2020 MEDIA MENTIONS: https://www.newcastleherald.com.au/story/6649108/purple-reigns-on-march-26/ https://www.female.com.au/freya-pearson-purple-day-for-epilepsy-awareness-interview.htm https://hobartobserver.com.au/?p=4175 For the first time, the Sydney Opera House will light up purple for Epilepsy Action $250,000 Purple Day fundraising goal to go towards life-changing technology, $1 for every personRead More…
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17 June 2020
Purple Wiggle Lachy gets behind Purple Day as Ambassador for Epilepsy Action Australia Purple Day for Epilepsy Awareness is March 26, 2020 MEDIA MENTIONS: http://www.motherpedia.com.au/article/purple-wiggle-lachy-gets-behind-purple-day-as-ambassador-for-epilepsy-actio https://www.bountyparents.com.au/expert-advice/purple-wiggle-lachy-gillespie-purple-day-epilepsy/ Epilepsy Action has also arranged for the sails of Sydney Opera House to light up purple on Purple Day, raising awareness of epilepsy for the first time Epilepsy ActionRead More…
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