CEO’s Blog

Living with Epilepsy and Disability

24 July 2018

It’s estimated that some 30,000 Australians living with intellectual disability also have epilepsy. Unfortunately, as many as one in four are misdiagnosed, largely due to inadequate training in recognising and managing seizures by their caregivers. Not only is epilepsy more common in people with intellectual disability than in the rest of the population; the requirementRead More…

Read More >

Purple Day is here again!

22 March 2018

Epilepsy awareness is something we should strive for everyday but especially on March 26th  – Purple Day! Knowledge is power when it comes to understanding and assisting someone with epilepsy. So, this Purple Day, Epilepsy Action Australia has an important message for the public: Please educate yourselves about epilepsy and learn how to assist someoneRead More…

Read More >

Much Achieved … Still More to Be Done

14 December 2017

It’s natural as another year comes to a close that we reflect on all that we have achieved throughout 2017. There’s still so much to be done but we’ve had some major wins. I wholeheartedly thank the Epilepsy Action Australia, our partners, stakeholders and clients for all their support, hard work and donations. Recently, afterRead More…

Read More >

This SUDEP Action Day Join Us in Asking ‘Why?’

23 October 2017

As those with epilepsy know only too well, there are a lot of misconceptions about the condition. One of them is epilepsy does not lead to death.   Unfortunately, one tragic consequence of epilepsy can be SUDEP – Sudden Unexpected Death in Epilepsy, which is estimated to be responsible for a devastating 150 epilepsy-related deathsRead More…

Read More >

New Website and Logo Reflects ‘Take Action’ Approach

09 August 2017

During my 11 years as CEO of Epilepsy Action Australia I have been very lucky to be part of many exciting initiatives, including Purple Day and the launch of the MyEpilepsyKey resource. But I have to say that the unveiling this month of our fabulous new website and logo joins my list of significant highlights.Read More…

Read More >