The new campaign to reach thousands of Australians with drug resistant epilepsy that fall through the treatment gap

19 March 2024

Media Title: LivaNova Media Release Media Type: Online Publish Date: 19 March 2024 Headline: A new campaign focused on helping Australians living with drug-resistant epilepsy to better understand available treatment options and access them sooner was launched today. Abstract:A new campaign, “Mind the Treatment Gap,” has been launched to address the alarming treatment gap facedRead More…

08 November 2023

Media Title: Local News Pub Media Type: Online Publish Date: 6 November 2023 Headline: Nearly 600 young suffering epilepsy Abstract: BORN with cerebral palsy and still not talking or walking at seven, Jonah Issa also has epilepsy which he was diagnosed with at 16 months. Link: https://www.localnewsplus.com.au/nearly-600-young-suffering-epilepsy/

31 October 2023

Media Title: UCB Australia Media Type: Online Publish Date: 27 October 2023 Headline: Empowering Hope: UCB Australia’s Commitment to Childhood Epilepsy Research Abstract: UCB Australia has announced a research grant aimed at achieving early diagnosis and better outcomes for children living with severe genetic childhood epilepsy. Link: https://www.ucb.com/Patients/magazine/detail/article/Empowering-Hope-UCB-Australia-s-Commitment-to-Childhood-Epilepsy-Research

13 September 2023

Media Title: Newcastle Permanent Media Type: Online Publish Date: 12 September 2023 Headline: Epilepsy Youth Conference comes to the Hunter for the first time Abstract: 30 young people living with epilepsy travelled to Newcastle this weekend, 9-10 September, to take part in Epilepsy Action Australia’s (EAA) Youth Conference, made possible by a grant from NewcastleRead More…

03 December 2020

Media Title: Bored Panda Media Type: Online Publish Date: 2 December 2020 Headline: My Seven-Year-Old Daughter Has Epilepsy, So I’m Trying To Sell A Fancy Version Of Her Teddy Bear For A Million Dollars To Fund Research Abstract: In late 2018, I was out for dinner with my son Roarke and daughter Lila. We wereRead More…

03 December 2020

Media Title: SMH Media Type: Online Publish Date: 22 November 2020 Journalist: Peter FitzSimons Headline: Home wanted for #milliondollarteddybear Abstract: Peter FitzSimons lost his brother Martin to epilepsy when he was just eight years old. All these years on, despite great strides having being made to limit its lethality, much research remains to be done. Link: https://www.smh.com.au/national/nsw/time-to-act-premier-our-koalas-and-farmers-deserve-better-20201120-p56gjq.html

03 December 2020

Media Title: The Age Media Type: Online Publish Date: 29 November 2020 Headline: The Age photos of the week, November 29, 2020 Abstract: Lila Wadelton, 7, was diagnosed with epilepsy last year. Her father, advertising writer Alex Wadelton, came up with Million Dollar Teddy Bear: he is calling on a philanthropist to buy a designerRead More…

03 December 2020

Media Title: The Age Media Type: Online and Print Publish Date: 27 November 2020 Journalist: Carolyn Webber Headline: Epilepsy charity hoping million-dollar teddy will turn fortunes around Abstract: It may be a rather outrageous price for a plush toy, and it may be a bit of a lark but should someone stump up a cool “mill”Read More…

10 November 2020

Media Title: Medical Republic Media Type: Online Publish Date: 26 October 2020 Headline: Catching subtle seizures can prevent car accidents Abstract: Carol Ireland, the CEO of patient education group Epilepsy Action, said there were car accidents in Australia tied to undiagnosed epilepsy from time to time, but that many patients with epilepsy could drive safely.Read More…

10 November 2020

Media Title: The Courier Media Type: Online Publish Date: 8 August 2020 Headline: Coronavirus in Ballarat: Doctors’ call to take better care of health Abstract: Link: https://www.thecourier.com.au/story/6868979/doctors-call-on-ballarat-to-take-better-care-of-health-this-lockdown/

10 November 2020

Media Title: Canberra Weekly Media Type: Online Publish Date: 10 Sept 2020 Headline: Selfcare September Abstract: Epilepsy Action Australia’s new month-long initiative Self Care September has a life-changing message: it makes sense to put yourself first Link: https://canberraweekly.com.au/have-you-heard-slow-cooker-donations/

17 June 2020

Media Title: Motherpedia Media Type: Online Publish Date: 3 March 2020 Headline: Purple Wiggle Lachy Gets behind Purple Day as ambassador for Epilepsy Action Abstract: Purple Wiggle Lachy jumped at the chance to become an Ambassador for Epilepsy Action Australia; epilepsy has been a part of Lachy’s family’s life for as long as he canRead More…