United in Purpose: Key Epilepsy Organisations Join Forces

United in Purpose: Key Epilepsy Organisations Join Forces

22 August 2025

In a show of unity across state/territory borders, three leading epilepsy organisations: Epilepsy WA, Epilepsy Action Australia, and The Epilepsy Centre (SA & NT), have joined forces to launch Step 4 Epilepsy, a national awareness and fundraising campaign aimed at improving the lives of the 270,000 Australians living with epilepsy. More than just a fundraiser,Read More...

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‘It’s actually dangerous’: Why Australia won’t follow UK epilepsy drug rules

11 August 2025

Media Title: ‘It’s actually dangerous’: Why Australia won’t follow UK epilepsy drug rules Media Type: Online Publish Date: 10 August 2025 Abstract: When Thomas Mezger woke dazed on his balcony last week with a smashed table beneath him, he knew the cause of the damage immediately, even though he had no recollection of it.“I hadRead More…

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Building safer and inclusive school environments with epilepsy training

30 July 2025

Media Title: Building safer and inclusive school environments with epilepsy training Media Type: Online Publish Date: 29 July 2025 Abstract: Having worked in the sector for over 18 years, I have gained valuable insight into the challenges faced by children with epilepsy. I have witnessed firsthand the profound difference that awareness and education can makeRead More…

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Survey confirms vicious cycle of epilepsy and anxiety

28 July 2025

Media Title: Survey confirms vicious cycle of epilepsy and anxiety Media Type: Online Publish Date: 26 July 2025 Abstract: After years of anxiety living with epilepsy Rosie Connell-Moller got her life back on track thanks to a game-changing implant that sends signals to her brain to calm it down. The 40-year-old is now a full-timeRead More…

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The new campaign to reach thousands of Australians with drug resistant epilepsy that fall through the treatment gap

19 March 2024

Media Title: LivaNova Media Release Media Type: Online Publish Date: 19 March 2024 Headline: A new campaign focused on helping Australians living with drug-resistant epilepsy to better understand available treatment options and access them sooner was launched today. Abstract:A new campaign, “Mind the Treatment Gap,” has been launched to address the alarming treatment gap facedRead More…

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Nearly 600 young suffering epilepsy

08 November 2023

Media Title: Local News Pub Media Type: Online Publish Date: 6 November 2023 Headline: Nearly 600 young suffering epilepsy Abstract: BORN with cerebral palsy and still not talking or walking at seven, Jonah Issa also has epilepsy which he was diagnosed with at 16 months. Link: https://www.localnewsplus.com.au/nearly-600-young-suffering-epilepsy/

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Empowering Hope: UCB Australia’s Commitment to Childhood Epilepsy Research

31 October 2023

Media Title: UCB Australia Media Type: Online Publish Date: 27 October 2023 Headline: Empowering Hope: UCB Australia’s Commitment to Childhood Epilepsy Research Abstract: UCB Australia has announced a research grant aimed at achieving early diagnosis and better outcomes for children living with severe genetic childhood epilepsy. Link: https://www.ucb.com/Patients/magazine/detail/article/Empowering-Hope-UCB-Australia-s-Commitment-to-Childhood-Epilepsy-Research

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Epilepsy Youth Conference comes to the Hunter for the first time

13 September 2023

Media Title: Newcastle Permanent Media Type: Online Publish Date: 12 September 2023 Headline: Epilepsy Youth Conference comes to the Hunter for the first time Abstract: 30 young people living with epilepsy travelled to Newcastle this weekend, 9-10 September, to take part in Epilepsy Action Australia’s (EAA) Youth Conference, made possible by a grant from NewcastleRead More…

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My Seven-Year-Old Daughter Has Epilepsy, So I’m Trying To Sell A Fancy Version Of Her Teddy Bear For A Million Dollars To Fund Research

03 December 2020

Media Title: Bored Panda Media Type: Online Publish Date: 2 December 2020 Headline: My Seven-Year-Old Daughter Has Epilepsy, So I’m Trying To Sell A Fancy Version Of Her Teddy Bear For A Million Dollars To Fund Research Abstract: In late 2018, I was out for dinner with my son Roarke and daughter Lila. We wereRead More…

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Home wanted for #milliondollarteddybear

03 December 2020

Media Title: SMH Media Type: Online Publish Date: 22 November 2020 Journalist: Peter FitzSimons Headline: Home wanted for #milliondollarteddybear Abstract: Peter FitzSimons lost his brother Martin to epilepsy when he was just eight years old. All these years on, despite great strides having being made to limit its lethality, much research remains to be done. Link: https://www.smh.com.au/national/nsw/time-to-act-premier-our-koalas-and-farmers-deserve-better-20201120-p56gjq.html

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The Age photos of the week, November 29, 2020

03 December 2020

Media Title: The Age Media Type: Online Publish Date: 29 November 2020 Headline: The Age photos of the week, November 29, 2020 Abstract: Lila Wadelton, 7, was diagnosed with epilepsy last year. Her father, advertising writer Alex Wadelton, came up with Million Dollar Teddy Bear: he is calling on a philanthropist to buy a designerRead More…

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Epilepsy charity hoping million-dollar teddy will turn fortunes around

03 December 2020

Media Title: The Age Media Type: Online and Print Publish Date: 27 November 2020 Journalist: Carolyn Webber Headline: Epilepsy charity hoping million-dollar teddy will turn fortunes around Abstract: It may be a rather outrageous price for a plush toy, and it may be a bit of a lark but should someone stump up a cool “mill”Read More…

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