I know there was a great deal of upset, especially amongst ‘epilepsy parents’, following comments made in an ABC Brisbane television news item on the evening of 19 September. The segment covered the story of a father who is pleading with the Queensland Government to allow his 8 year old daughter, who has a regressive neurological disorder that causes chronic multiple seizures, access to medicinal cannabis oil while she is in hospital.
So another Purple Day has come and gone. I am reflecting on the successes, the highs and the lows, the mixed emotions that were expressed over the past few days.
Monday January 4 was our first day back in the office. Some staff were still on leave so it was quiet and we expected the rest of the week to be that way.
Last Friday I gave evidence to the Senate 'enquiry into the current levels of access and attainment for students with disability in the school system, and the impact on students and families associated with inadequate levels of support'. I was accompanied by our Clinical Governance Manager, Lisa Todd who also gave evidence.
This afternoon in Fremantle, Western Australia a funeral will be held for a young lady, just 2 months short of her 21st birthday. She took her own life after battling severe depression.
Living with epilepsy, Lauren had become known to us when she attended a residential youth event in Sydney in 2013. During the event she also made her way into the hearts of the staff and the 72 other young people who attended – people whose lives were also affected by epilepsy in some way.
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In this blog, and on my own Facebook page, I don’t often express my own personal opinions on politics, religion or even popular current affairs and issues.
The legend of Tony Greig as cricketer, players’ rights pioneer, media commentator, and sports entrepreneur is well known. In the late 70’s Tony, along with Kerry Packer, came to be known globally for the introduction of World Series Cricket – a revolution that took cricket to a whole new level and changed the game forever.