TikTok ‘seizure challenge’ sparks outrage for mocking life threatening disorder

TikTok ‘seizure challenge’ sparks outrage for mocking life threatening disorder

17 June 2020

Media Title: 9Now Media Type: Online Publish Date: 1 May 2020 Journalist: Tineka Everaadt Headline: TikTok ‘seizure challenge’ sparks outrage for mocking life threatening disorder Abstract: A social media craze where teens pretend to have a seizure for “fun” has parents and advocacy groups outraged.  Link: https://9now.nine.com.au/a-current-affair/tiktok-seizure-challenge-sparks-outrage-and-ridicules-epilepsys-severity/9cfcdbd1-18ff-4c74-9b1c-b65d71a7b772

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What is TikTok’s Seizure Challenge? Here’s why charities are trying to put a stop to it!

17 June 2020

Media Title: HITC Media Type: Online Publish Date: 1 May 2020 Journalist: Ella Kipling Headline: What is TikTok’s Seizure Challenge? Here’s why charities are trying to put a stop to it! Abstract: Charities have even had to get involved to condemn the challenge and push for better seizure and epilepsy awareness in schools and onlineRead More…

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Affordable products for epilepsy patients arrives in Australia

17 June 2020

Media Title: Cannabis Intel Media Type: Online Publish Date: 28 January 2019 Headline: Affordable products for epilepsy patients arrives in Australia Abstract: MGC Pharma has also collaborated with Epilepsy Action Australia to develop C4E (cannabis for epilepsy), to provide education to epilepsy sufferers and their families on medicinal cannabis and its interaction with the illness.Read More…

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MGC Pharmaceuticals announces 2019 commercialisation strategy

17 June 2020

Media Title: Kalkine Media Media Type: Online Publish Date: 3 April 2019 Headline: MGC Pharmaceuticals announces 2019 commercialisation strategy Abstract: Includes the C4E education platform in collaboration with Epilepsy Action Australia, among others. Link: https://kalkinemedia.com/au/news/mgc-pharmaceuticals-announces-2019-commercialisation-strategy

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MGC Pharma: Pushing the envelope of phytocannabinoid-based research

17 June 2020

Media Title: Health Europa Media Type: Online Publish Date: 11 April 2019 Headline: MGC Pharma: Pushing the envelope of phytocannabinoid-based research Abstract: MGC Pharma has a strong relationship with Epilepsy Action Australia, the country’s peak patient advocacy association. The relationship is varied, including collaboration on research, provision of information to patients, and more. In 2019,Read More…

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Medical Cannabis System So Tricky, ‘Doctor Google’ Used By Epilepsy Patients

17 June 2020

Media Title: 10 Daily Media Type: Online Publish Date: 18 September 2019 Journalist: Josh Butler Headline: Medical Cannabis System So Tricky, ‘Doctor Google’ Used By Epilepsy Patients Abstract: Australian doctors lack knowledge about medical cannabis, a leading epilepsy group has said, as it launches a new tool to educate those with the condition about howRead More…

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New medicinal cannabis and epilepsy website helping Australians to make more informed decisions

17 June 2020

Media Title: NIB Foundation Media Type: Online Publish Date: 18 September 2019 Headline: New medicinal cannabis and epilepsy website helping Australians to make more informed decisions Abstract: In partnership with Epilepsy Action Australia, we’ve helped to launch a new website which aims to help thousands of Australians living with epilepsy to make more informed choicesRead More…

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Medicinal Cannabis And Epilepsy

17 June 2020

Media Title: Ultra 106.5FM Media Type: Online Headline: Medicinal Cannabis And Epilepsy Abstract: A new website aims to help thousands of Australians living with epilepsy, particularly those with devastating medication resistant types, make informed choices when it comes to medicinal cannabis. Link: https://ultra106five.com/medicinal-cannabis-epilepsy/

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CEO of Epilepsy Action Australia slams “appalling” TikTok ‘seizure challenge’ trend

17 June 2020

Media Title: Viva Communications Media Type: Online Publish Date: 1 May 2020 Journalist: “vivapaul” Headline: CEO of Epilepsy Action Australia slams “appalling” TikTok ‘seizure challenge’ trend Abstract: CEO of Epilepsy Action Australia, Carol Ireland, released a public statement yesterday, following a recent controversial viral trend on the video app TikTok, known as the “seizure challenge”.Read More…

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SUDEP Action partner with Epilepsy Action Australia for global awareness campaign

17 June 2020

Media Title: SUDEP.org Media Type: Online Publish Date: 20 October 2017 Headline: SUDEP Action partner with Epilepsy Action Australia for global awareness campaign Abstract: SUDEP Action has established an exciting new collaboration with Epilepsy Action Australia in time for SUDEP Action Day 2017. This collaboration provides the most current information related to epilepsy-related death toRead More…

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Epilepsy Action Australia and SUDEP Action Partnership

17 June 2020

Media Title: Health Professional Radio Media Type: Online Publish Date: 31 October 2017 Journalist: Tabetha Moreto Headline: Epilepsy Action Australia and SUDEP Action Partnership Abstract: TRANSCRIPT from Audio – In today’s interview, Carol Ireland talks about the new partnership that her organization has forged with SUDEP Action in order to tackle epilepsy and SUDEP whichRead More…

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GP’s son dies in sleep from condition she’s never heard of

17 June 2020

Media Title: News.com.au Media Type: Online Publish Date: 21 October 2019 Journalist: Stephanie Bedo Headline: GP’s son dies in sleep from condition she’s never heard of Abstract: To improve knowledge and awareness of SUDEP and epilepsy mortality risk factors with clinicians and people living with epilepsy, Epilepsy Action Australia is launching the SUDEP and SeizureRead More…

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