Submitted by Rud Verma
Meet Ember At just 10 months old, Ember began experiencing seizures that caused her to lose important development skills, including crawling and babbling.
After numerous hospitalizations and treatments, Ember received a heart-breaking diagnosis of KCNT1, an extremely rare condition with only 300 known cases worldwide.
Ember will be turning 5 this March, she continues to inspire everyone around her with her courage and resilience.
Her mum, Jac, has become a tireless advocate for Ember and the KCNT1 community, sacrificing her career to provide round-the-clock care.
This March, Ember and Jac will be dressing up in purple and hosting a purple party to support epilepsy awareness! You can join them by dressing up in purple, decorating your home or workplace, or hosting your own purple‑themed event, all to support the 266,000 Australians living with epilepsy, just like Ember. 
Follow their inspiring journey on TikTok @jacalynandember
