Before the discussion

Before you discuss your child’s epilepsy with others you might like to:

  • Write down the things you want people to know and the things you are not going to say (this will be different depending on who you are telling).
  • Speak with a professional such as a nurse educator from Epilepsy Action Australia for information and support.
  • Prepare something in writing to leave with the school in case you don’t say everything you plan to say. The school will probably request a copy of your child’s diagnosis from a doctor.
  • Think about promoting your child’s strengths and not only focussing on the diagnosis.
  • Speak with a counsellor if you find the thought of speaking about your child’s epilepsy too overwhelming or distressing.