Before you discuss your child’s epilepsy with others you might like to:
- Write down the things you want people to know and the things you are not going to say (this will be different depending on who you are telling).
- Speak with a professional such as an epilepsy nurse from Epilepsy Action Australia for information and support.
- Prepare something in writing to leave with the school in case you don’t say everything you plan to say. The school may request a copy of your child’s diagnosis from a doctor.
- Think about promoting your child’s strengths and not only focusing on the diagnosis.
- Speak with a counsellor if you find the thought of speaking about your child’s epilepsy too overwhelming or distressing.
Other links
The Massachusetts General Hospital website has some ideas about talking about your child’s epilepsy.
