Talking openly about your child’s epilepsy can be very daunting but it can also be empowering. How comfortable you are with speaking openly about the diagnosis will probably depend on how you are coping yourself.
Take time to access the support you require to understand the diagnosis and to process your own thoughts and emotions. Some people will find it useful to meet other families with similar experiences. Contact Epilepsy Action Australia if you would like to be in contact with other families who have a child with epilepsy or you are interested in attending a family camp.
Click on the link to hear Dr Maria Kangas, Program Director Masters of Psychology Macquarie University Australia, explain why telling others about your child’s epilepsy can be so difficult.
Click on the link to hear Donna Walsh talk about her experience of telling others about her child’s epilepsy.