PRESS RELEASE: Purple Day 2019

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Do you know what to do if someone has a seizure?

Purple Day for Epilepsy Awareness – March 26, 2019

For Purple Day 2019 (March 26) people with epilepsy are encouraging the Australian community to watch a short video illustrating the basics of seizure first aid in order to reduce the fear they may experience if someone has a seizure in front of them and requires assistance.

Around 250,000 Australians are currently diagnosed with epilepsy, and approximately 3.5% of the Australian population will experience this neurological disorder at some point in their lifetime. On a global scale, more than 65 million people worldwide have epilepsy, making it the world’s most common serious brain disorder. However, despite these statistics, epilepsy remains shrouded in mystery and misconceptions for much of the community.

“Every year for Purple Day, Epilepsy Action works to bring epilepsy out of the shadows and increase awareness of the impact that this condition can have on individuals and families,” explains Carol Ireland, CEO of Epilepsy Action Australia. “This year our focus is on highlighting the potentially life-saving benefits of seizure first aid. We believe having more friends, family members, colleagues and acquaintances know what to do if someone has a seizure will help make people with epilepsy feel more confident and secure carrying on with their day-to-day lives, knowing that if they do have a seizure, someone will be able to help them.”

Seizure First Aid – Key Steps

  • Stay with the person
  • Keep them safe, removing anything that could hurt them
  • Don’t try to restrain them
  • Don’t put anything in their mouth
  • Roll them onto their side once jerking/shaking subsides
  • Reassure them until they have recovered
  • Call an ambulance if the seizure lasts longer than five minutes

Malinda Hayward, a yoga instructor from Sydney who was diagnosed with epilepsy 10 years ago, says she would feel much more confident if the level of awareness of seizure first aid was higher within the community, having experienced several tonic clonic seizures that have seen her lose consciousness for up to 20 minutes at a time.

“Knowing what to do if someone has a seizure can literally be life-saving,” says Malinda. “And the key steps are very simple – make sure the person is safe and can’t hurt themselves and then just let them ride out the seizure. Don’t try to hold them down or put your hands near their mouth, that will only make things worse and could cause injury to yourself. Seizures can last for a few seconds or for a long time, so if you can time it on your watch or phone that will help medical staff afterwards. If it lasts longer than five minutes, call an ambulance.”

Jodi Williams, from Perth, is another firm believer in the importance of knowing seizure first aid. Jodi’s son Benjamin, now 7, was first diagnosed with epilepsy as a toddler, and experiences several seizures every week. Jodi believes that it’s important to acknowledge that seizures can be frightening, but that learning how to respond can minimise that fear. “Witnessing a seizure can be scary,” says Jodi, “but if you know how to help the person, you’ll feel more confident and in control. And it’s not difficult to learn, even kids can learn seizure first aid.”

To help people understand the simple steps to take when someone has a seizure, Epilepsy Action has developed a series of animated videos for both adults and children.

“I’d like to encourage everyone to take a few minutes out of their day to watch these videos,” concludes Ms Ireland, “and see just how simple it can be to help someone who is having a seizure.”

Seizure First Aid for Children (run time 3mins)

Seizure First Aid for Adults (run time 4mins)

The Adult Seizure First Aid video is also available in Arabic and Chinese.

Epilepsy Action has also developed a Seizure First Aid Poster available to download and display in schools, workplaces and public spaces. Alternative versions of this poster can be found on the Epilepsy Action website under First Aid.

Get Involved in Purple Day this March

Epilepsy Action would like to encourage all Australians to get involved in Purple Day this year to raise funds and awareness, with some ideas including:

Funds raised by Epilepsy Action for Purple Day will go towards life-changing programs and services which are delivered to people with epilepsy right across the country.

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