Matt Preston

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Submitted by Rud Verma

As the international ambassador for SUDEP Action (UK) and an ambassador for Epilepsy Action Australia, Matt is dedicated to raising SUDEP awareness and supporting efforts to reduce epilepsy-related risks.

Matt’s brother, William tragically died from Sudden Unexplained Death in Epilepsy (SUDEP), the leading cause of epilepsy-related premature death, when he was just 22.

Diagnosed with epilepsy four years earlier, William’s death profoundly inspired family members to channel their grief into advocacy. Matt’s mother, Jennifer Preston, produced the booklet Epilepsy and the Young Adult (1990) and co-founded Epilepsy Bereaved, now SUDEP Action, providing vital support to bereaved families.

Matt discusses his brother’s death and its impact on their family in his memoir Big Mouth (2023).