Submitted by Linda McGlone
Erin and her family continue to struggle to achieve seizure control for Lulu, and as a result her diagnosis has developed into Lennox Gastaut Syndrome, an equally severe form of epilepsy. Luella, now 4 years old, has complex special needs and requires Erin’s full time care.
Since Luella’s diagnosis, Erin has become a leading advocate for families dealing with childhood epilepsy founding the Lulu Love Project (LLP) and over the past three years has raised close to $500,000 for LLP and Epilepsy Action Australia. Erin’s goal is to continue shining a brighter light on epilepsy through social media and helping to raising essential funds for epilepsy.
