Meet Maddison

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Submitted by Rud Verma

๐Ÿ’œMaddisonโ€™s Epilepsy Journey ๐Ÿ’œ
At just 10 months old, Maddison experienced her first traumatic seizure. What began as an ordinary evening quickly became a life changing emergency. She was rushed to hospital, intubated, placed in an induced coma, and spent weeks in ICU as doctors worked to stop relentless seizures.
Over the following years, Maddison endured multiple life threatening episodes, emergency transfers and long hospital stays before receiving a diagnosis of complex generalised genetic epilepsy, along with an acquired brain injury, severe intellectual disability and autism.
After countless medication trials, her seizures were finally brought under control and Maddison thrived. For nine years she danced in School Spectacular, became a Year 6 leader, captained her Boccia teams, represented NSW, and grew into a vibrant young girl who lights up every room she enters. Then last October, following a traumatic incident at school, Maddison experienced her first major seizure in years. She collapsed at home and stopped breathing. Once again, her family found themselves rebuilding.
Today, Maddison is back on care plans, rescue medications and constant vigilance. Her journey is a powerful reminder that epilepsy is not just seizures, it is trauma, resilience, fear and strength existing side by side.
But above all, Maddison is more than her diagnosis. She is funny. She is brave. She is deeply loved. ๐Ÿ’œ