PRESS RELEASE: Sudden Unexpected Death in Epilepsy (SUDEP)

PRESS RELEASE: Sudden Unexpected Death in Epilepsy (SUDEP)

17 June 2020

Heartbroken families applaud launch of new clinical tool to prevent premature epilepsy deaths Sudden Unexpected Death in Epilepsy (SUDEP) Action Day, October 23 8 years ago, Anny Marrett received a phone call that no parent should have to experience. “When Roy and I got a call on Monday morning that George had not turned upRead More…

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PRESS RELEASE: Purple Wiggle Ambassador

17 June 2020

Purple Wiggle Lachy gets behind Purple Day as Ambassador for Epilepsy Action Australia Purple Day for Epilepsy Awareness is March 26, 2020 MEDIA MENTIONS: http://www.motherpedia.com.au/article/purple-wiggle-lachy-gets-behind-purple-day-as-ambassador-for-epilepsy-actio  https://www.bountyparents.com.au/expert-advice/purple-wiggle-lachy-gillespie-purple-day-epilepsy/  Epilepsy Action has also arranged for the sails of Sydney Opera House to light up purple on Purple Day, raising awareness of epilepsy for the first time Epilepsy ActionRead More…

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PRESS RELEASE: Purple Day 2020

17 June 2020

250,000 Shades of Purple: Epilepsy does not look the same for everyone Purple Day for Epilepsy Awareness – March 26, 2020 MEDIA MENTIONS: https://www.newcastleherald.com.au/story/6649108/purple-reigns-on-march-26/ https://www.female.com.au/freya-pearson-purple-day-for-epilepsy-awareness-interview.htm https://hobartobserver.com.au/?p=4175 For the first time, the Sydney Opera House will light up purple for Epilepsy Action $250,000 Purple Day fundraising goal to go towards life-changing technology, $1 for every personRead More…

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Epilepsy Action Australia launches SUDEP and Seizure Safety Checklist

17 June 2020

Media Title: Lanham Media Media Type: Online Headline: Epilepsy Action Australia launches SUDEP and Seizure Safety Checklist Abstract: To improve knowledge and awareness of SUDEP and epilepsy mortality risk factors with clinicians and people living with epilepsy, Epilepsy Action Australia has launched the SUDEP and Seizure Safety Checklist. Link: https://www.lanhammedia.com.au/epilepsy-action-australia-launches-sudep-and-seizure-safety-checklist/

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New clinical tool to prevent premature epilepsy deaths

17 June 2020

Media Title: AMA Victoria Media Type: Online Publish Date: 24 October 2019 Journalist: Prof Terry O’Brien Headline: New clinical tool to prevent premature epilepsy deaths Abstract: Epilepsy Action Australia has launched the SUDEP and Seizure Safety Checklist, the first clinical tool in Australia to assist neurologists, GPs and other health practitioners to discuss and monitor risk factorsRead More…

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Families Aren’t Being Warned About ‘Cruel’ Sudden Epilepsy Deaths

17 June 2020

Media Title: 10 Daily Media Type: Online Publish Date: 23 October 2019 Journalist: Emma Brancastisano Headline: Families Aren’t Being Warned About ‘Cruel’ Sudden Epilepsy Deaths Abstract: Today, October 23, is SUDEP Action Day. To mark it the EAA has launched an Australian-first online tool to increase awareness of SUDEP among health professionals and patients. Link:Read More…

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UK epilepsy safety tool released in Australia in time for global awareness day

17 June 2020

Media Title: Sudep Action Day Media Type: Online Headline: UK epilepsy safety tool released in Australia in time for global awareness day Abstract: On 23 October, SUDEP Action Day, Epilepsy Action Australia welcome the launch of the SUDEP & Seizure Safety Checklist to health professionals in Australia. Link: http://sudepactionday.org/about/press-and-video/

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