Meeting the challenges of living with epilepsy

Meeting the challenges of living with epilepsy

17 June 2020

Media Title: The Age Media Type: Online Publish Date: 25 October 2019 Headline: Meeting the challenges of living with epilepsy Abstract: Epilepsy Action Australia provides support for families in a variety of ways. This includes access to specialised nurses, an Epilepsy Nurse Line (phone and email support) and online tools such as MyEpilepsyKey and StrongRead More…

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TikTok Juice WRLD ‘seizure challenge’ sparks outrage from advocates

17 June 2020

Media Title: 7News Media Type: Online Publish Date: 30 April 2020 Journalist: Louisa Cheatley with Emily Olle Headline: TikTok Juice WRLD ‘seizure challenge’ sparks outrage from advocates Abstract: A social media craze is being slammed for making fun of people with epilepsy. TikTok videos of people pretending to have seizures have prompted a desperate pleaRead More…

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New Epilepsy Nurse Helpline supports sufferers

17 June 2020

Media Title: Australian Nursing & Midwifery Journal Media Type: Online Publish Date: 18 September 2019 Headline: New Epilepsy Nurse Helpline supports sufferers Abstract: A national Epilepsy Nurse Helpline has been launched in a bid to improve health outcomes for the 250,000 Australians living with the neurological disorder, especially those in rural and remote who mayRead More…

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Nurse line support

17 June 2020

Media Title: The Corowa Free Press Media Type: Online Publish Date: 19 July 2019 Headline: Nurse line support Abstract: An Australian-first telephone and email service to support people living with epilepsy and their families has been launched by Epilepsy Action Australia. Link: https://www.corowafreepress.com.au/2019/07/03/664457/nurse-line-support

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TikTok ‘seizure challenge’ sparks outrage for mocking life threatening disorder

17 June 2020

Media Title: 9Now Media Type: Online Publish Date: 1 May 2020 Journalist: Tineka Everaadt Headline: TikTok ‘seizure challenge’ sparks outrage for mocking life threatening disorder Abstract: A social media craze where teens pretend to have a seizure for “fun” has parents and advocacy groups outraged.  Link: https://9now.nine.com.au/a-current-affair/tiktok-seizure-challenge-sparks-outrage-and-ridicules-epilepsys-severity/9cfcdbd1-18ff-4c74-9b1c-b65d71a7b772

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What is TikTok’s Seizure Challenge? Here’s why charities are trying to put a stop to it!

17 June 2020

Media Title: HITC Media Type: Online Publish Date: 1 May 2020 Journalist: Ella Kipling Headline: What is TikTok’s Seizure Challenge? Here’s why charities are trying to put a stop to it! Abstract: Charities have even had to get involved to condemn the challenge and push for better seizure and epilepsy awareness in schools and onlineRead More…

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Australians living with epilepsy now have access to a new helpline!

17 June 2020

Media Title: Tuberous Sclerosis Australia Media Type: Online Headline: Australians living with epilepsy now have access to a new helpline! Abstract: Tuberous Sclerosis Australia spreads the word on the Epilepsy Nurse Line Link: https://tsa.org.au/epilepsy-helpline/epilepsy-nurse-line/

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Nurse line support

17 June 2020

Media Title: Campaspe News Media Type: Online Publish Date: 3 July 2019 Headline: Nurse line support Abstract: An Australian-first telephone and email service to support people living with epilepsy and their families has been launched by Epilepsy Action Australia. Link: http://national.campaspenews.com.au/@seymour-news/2019/07/03/664457/nurse-line-support

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MGC Pharmaceuticals announces 2019 commercialisation strategy

17 June 2020

Media Title: Kalkine Media Media Type: Online Publish Date: 3 April 2019 Headline: MGC Pharmaceuticals announces 2019 commercialisation strategy Abstract: Includes the C4E education platform in collaboration with Epilepsy Action Australia, among others. Link: https://kalkinemedia.com/au/news/mgc-pharmaceuticals-announces-2019-commercialisation-strategy

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MGC Pharma: Pushing the envelope of phytocannabinoid-based research

17 June 2020

Media Title: Health Europa Media Type: Online Publish Date: 11 April 2019 Headline: MGC Pharma: Pushing the envelope of phytocannabinoid-based research Abstract: MGC Pharma has a strong relationship with Epilepsy Action Australia, the country’s peak patient advocacy association. The relationship is varied, including collaboration on research, provision of information to patients, and more. In 2019,Read More…

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Medical Cannabis System So Tricky, ‘Doctor Google’ Used By Epilepsy Patients

17 June 2020

Media Title: 10 Daily Media Type: Online Publish Date: 18 September 2019 Journalist: Josh Butler Headline: Medical Cannabis System So Tricky, ‘Doctor Google’ Used By Epilepsy Patients Abstract: Australian doctors lack knowledge about medical cannabis, a leading epilepsy group has said, as it launches a new tool to educate those with the condition about howRead More…

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New medicinal cannabis and epilepsy website helping Australians to make more informed decisions

17 June 2020

Media Title: NIB Foundation Media Type: Online Publish Date: 18 September 2019 Headline: New medicinal cannabis and epilepsy website helping Australians to make more informed decisions Abstract: In partnership with Epilepsy Action Australia, we’ve helped to launch a new website which aims to help thousands of Australians living with epilepsy to make more informed choicesRead More…

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