Taking Action Against Risk

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Knowing about risks means you can take action to reduce them.

In summary, some steps you can take to reduce seizure related risks, injury or death are:

 

Get the best seizure control possible.

  1. Take your medication as prescribed
  2. Speak to your doctor if you are not happy with your current medication or side effects
  3. Regular reviews with your doctor

Be involved in managing your seizures

  1. Avoid any known seizure triggers for you
  2. Avoid drinking too much alcohol, avoid illicit drugs
  3. Know when your seizures are most likely to occur
  4. Get enough sleep
  5. Be healthy
  6. Manage stress

Make sure those close to you know what to do in case of a seizure

Go through the SUDEP and Safety Checklist with your doctor or one of our epilepsy nurses to help determine your risk.

The resources below may also help you understand risks, and live well with your epilepsy:

Brochures and Books – information for families and health professionals

 

Safety Devices – information about devices and tools available to support people with epilepsy

Clinical Information and Guidelines for Epilepsy – information for clinicians about how to diagnose, treat and manage epilepsy

Other Supports – should you have specific questions in between visits to your clinician

What is SUDEP Action Day?

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SUDEP Action Day is Wednesday October 16th and is devoted to raising awareness around the world about Sudden Unexpected Death in Epilepsy (SUDEP). The day encourages every person with epilepsy, their families, and health professionals to be more aware of risks and to take an active role in discussing SUDEP.

Epilepsy Action Australia Ambassador, Matt Preston lends his voice to drive greater awareness about SUDEP on SUDEP Action Day.

SUDEP and Seizure Safety Checklist

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Resources

  • Talk about risks:

Make an Online Telehealth Booking with a Epilepsy Nurse

SUDEP and Seizure Safety Checklist

  • Learn more about epilepsy and risks:

Epilepsy and Risk

Seizures, Safety and Injury

  • Articles:

Epilepsy, Risk & SUDEP

  • Factsheets:

SUDEP Fact Sheet

Self Management Fact Sheet

Additional resources

Epilepsy Action Australia, works in collaboration with our partner SUDEP Action, they have many resources at SUDEP Action – Making every epilepsy death count. SUDEP Action is the only UK charity supporting those whose loved ones have died suddenly from an epilepsy-related death

Visit the SUDEP Action Day page to find out more about SUDEP Action Day.

The Peter Doody Foundation has produced a film “Stop SUDEP Silence”  that includes stories of bereaved parents, people living with epilepsy, interviews with clinicians and information about seizure detection devices. PLEASE BE AWARE THAT SOME VIEWERS MAY FIND THE CONTENT OF THIS FILM DISTRESSING.