One-Stop Shop for Information and Advice
If you or someone you care about has epilepsy, whether newly diagnosed or living with epilepsy for some time, Epilepsy Action Australia is a trusted first point of call. We provide clear, up‑to‑date information, practical advice and emotional support to help you navigate epilepsy with confidence.
As a system‑wide enabler and change agent, we help individuals, families and communities connect with inclusive, epilepsy‑responsive supports and services. Our team, including Epilepsy Nurses, is here to answer questions, support wellbeing and strengthen understanding so people with epilepsy can participate fully in everyday life.
No matter where you are on your journey, we are here to help anyone affected by or wanting to learn more about epilepsy.
Our phone line is open during office hours. Call 1300 37 45 37 (1300 Epilepsy). All calls are confidential.
Feel free to email us your question [email protected] or use the form on the right-hand side of this page.
You can also find us on Facebook where we list all our latest news, events, forum links and research projects.
Written Information
- When your child has epilepsy – For carers whose child has been recently diagnosed
- When you have epilepsy – For people who have been recently diagnosed
- Our vast range of epilepsy related factsheets
Individual Service Plans
This is a service where we provide guidance to someone who may have more than one issue to address. We focus on the individual needs and provide information, education, referrals, case management and any necessary support to address these needs through group and/or individual service activities.
To arrange an individual service plan please call 1300 37 45 37 or email [email protected]
National Disability Insurance Scheme (NDIS)
The National Disability Insurance Scheme (NDIS) provides support for Australians with disability, their families and carers.
If you are living with epilepsy and qualify for the NDIS, you will need to develop a plan that identifies the necessary supports you require. You will need to ensure you include all the necessary epilepsy support services you require in your plan to enable you to safely access and participate in community activities, education and employment.
If you are not eligible for the NDIS, Epilepsy Action Australia will still assist you with our extensive services, support and resources.
Information about Epilepsy Action and the NDIS can be found here.
More NDIS information
- Our 7 step planning checklist will guide you through the NDIS process.
- To find out if you can access the NDIS, check out the requirements here.
- The NDIS website has lots of information and resources available to help you navigate the scheme and determine how it will work for you. You can also call the NDIS info line on: 1800 800 110
To discuss your epilepsy related needs and prepare for your planning meeting with a National Disability Insurance Agency (NDIA) representative, contact Epilepsy Action Australia on 1300 37 45 37 (1300 EPILEPSY) or [email protected]
