Epilepsy Information, Support and Advice
Your one‑stop shop for trusted epilepsy guidance
If you or someone you care about has epilepsy — whether newly diagnosed or living with epilepsy for many years — Epilepsy Action Australia is here to help. We are a trusted first point of contact, offering clear, up‑to‑date information, practical advice, and emotional support so you can navigate epilepsy with confidence.
Our team, including experienced Epilepsy Nurses, helps individuals, families, carers and communities connect with the right supports and services. We answer questions, provide guidance, and strengthen understanding so people with epilepsy can participate fully and safely in everyday life.
No matter where you are on your epilepsy journey, we are here for anyone wanting information, support, or reassurance.
How to Contact Us
Our phone line is open during office hours in each state and territory.
Call 1300 37 45 37 (1300 EPILEPSY). All calls are confidential.
You can also:
- Email us at [email protected]
- Use the “Get in Touch with Us” form on this page
- Follow us on Facebook for news, events, community forums and research updates
Written Information and Resources
- When your child has epilepsy – For parents and carers of newly diagnosed children
- When you have epilepsy – For adults who have been recently diagnosed
- Epilepsy Factsheets – our extensive range covering seizure types, treatments, safety, first aid and more
These resources are designed to help you understand epilepsy, manage day‑to‑day challenges, and feel more confident in supporting yourself or someone you care for.
Individual Service Plans
If you have multiple concerns or need more personalised support, we can develop an Individual Service Plan tailored to your needs.
This service may include:
- Information and education
- Referrals to relevant supports
- Case management
- Practical and emotional support
- Group or one‑to‑one service activities
Epilepsy and the National Disability Insurance Scheme (NDIS)
The National Disability Insurance Scheme (NDIS) provides support for Australians with disability, including many people living with epilepsy.
If you are eligible for the NDIS, you will need to create a plan that includes the epilepsy‑specific supports you require to safely participate in community life, education, employment and daily activities.
If you are not eligible for the NDIS, Epilepsy Action Australia can still support you with our wide range of services, resources and programs.
Information about Epilepsy Action and the NDIS can be found here.
More NDIS information
- Learn more about Epilepsy Action Australia and the NDIS.
- Check NDIS eligibility requirements here.
- Visit the NDIS website for detailed information and resources available to help you navigate the scheme and determine how it will work for you.
- You can also call the NDIS info line on: 1800 800 110
For help preparing for your NDIS planning meeting or discussing your epilepsy‑related needs, contact us on 1300 37 45 37 (1300 EPILEPSY) or [email protected]
