One-Stop Shop for Information and Advice
If you, a friend or someone in your family is newly diagnosed with epilepsy, Epilepsy Action is great first point-of-call and can provide you with everything from written information on the condition to advice on financial support or the National Disability Insurance Scheme (NDIS).
We can also offer support to those who have had epilepsy for some time but who may require emotional support, want to connect to others in similar circumstances or have questions for our nurse consultants about a particular medication or seizure safety.
No matter what you need, we can be there for you either by email or phone or in a face-to-face meeting.
If you have epilepsy or know someone with epilepsy, we can help you source the information or assist with services you may require. We are here to help anyone affected by or interested in learning about epilepsy.
Our phone line is open during office hours. Call 1300 37 45 37 (1300 Epilepsy). All calls are confidential.
Feel free to email us your question epilepsy@epilepsy.org.au or use the form on the right-hand side of this page.
You can also find us on Facebook where we list all our latest news, events, forum links and research projects.
Written Information
- When your child has epilepsy – For carers whose child has been recently diagnosed
- When you have epilepsy – For people who have been recently diagnosed
We also have a large range of factsheets and checklists on many different topics from seizure control to medical management.
Individual Service Plans
This is a service where we provide guidance to someone who may have more than one issue to address. We focus on the individual needs and provide information, education, referrals, case management and any necessary support to address these needs through group and/or individual service activities.
To arrange an individual service plan please call 1300 37 45 37 or email epilepsy@epilepsy.org.au
National Disability Insurance Scheme (NDIS)
The National Disability Insurance Scheme (NDIS) provides support for Australians with disability, their families and carers.
People with disability have the right to decide their own best interests, and to have choice and control over their lives and the supports they receive. Through the NDIS, people with disability will be able to access the reasonable and necessary supports they need, to live the life they want and achieve their goals and aspirations.
The NDIS helps people with a disability to:
- access mainstream services and supports
- access community services and supports
- maintain informal support arrangements
- receive reasonable and necessary funded supports.
If you are living with epilepsy and qualify for the NDIS, you will need to develop a plan that identifies the necessary supports you require. You will need to ensure you include all the necessary epilepsy support services you require in your plan to enable you to safely access and participate in community activities, education and employment.
If you are not eligible for the NDIS, Epilepsy Action can still assist you with our extensive services, support and resources.
Information about Epilepsy Action and the NDIS can be found here.
More NDIS information
- Our 7 step planning checklist will guide you through the NDIS process.
- To find out if you can access the NDIS, check out the requirements here.
- The NDIS website has lots of information and resources available to help you navigate the scheme and determine how it will work for you. You can also call the NDIS info line on: 1800 800 110
To discuss your epilepsy related needs and prepare for your planning meeting with a National Disability Insurance Agency (NDIA) representative, contact Epilepsy Action on 1300 37 45 37 (1300 EPILEPSY) or epilepsy@epilepsy.org.au
