A gentle reminder that October 23 is SUDEP Action Day. Our thoughts are with those who have experienced this, but we know thoughts aren’t enough.
SUDEP Action Day is an international day supported by organisations across the world, including Epilepsy Action Australia, who join together to shine the light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.
Last year, Epilepsy Action Australia launched the first Australian SUDEP and Seizure Safety Checklist. This will improve knowledge and awareness of SUDEP and epilepsy mortality risk factors with clinicians and people living with epilepsy.
The Checklist is the first clinical tool in Australia to assist neurologists, GPs and other health practitioners to discuss and monitor risk factors with their patients aged over 16 years. It is used in a 10-minute consultation that provides the latest evidence on risk factors for premature mortality in epilepsy.
All Epilepsy Action Australia specialist epilepsy nurses are trained in using the Checklist. This means people living with epilepsy anywhere in Australia don’t have to wait for a GP visit, they can make an appointment with us to start the discussion about reducing their risks. Epilepsy Action Australia will be the only epilepsy organisation in Australia to offer this important service for Australians over 16 years living with epilepsy.
“If you live with epilepsy, ask your doctor about the SUDEP and Seizure Safety Checklist. You can download an info sheet from the website to give to your doctor, or simply email or call to make an appointment with one of our specialist epilepsy nurses. Having regular conversations about epilepsy-related risks can help people living with epilepsy take positive actions that could save lives,” says Carol Ireland, Chief Executive Officer of Epilepsy Action Australia.
Check it out via the link for further information: https://www.epilepsy.org.au/sudep-checklist
If you have lost a loved one with epilepsy please visit our Epilepsy in Memorandum Facebook page