SUDEP Action Day is an international day supported by organisations across the world, including Epilepsy Action Australia, who join together to shine the light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.
2018 theme is: #Why
On Tuesday 23 October 2018, we want YOUR help to raise these ‘why’ questions. We want you to help us shine a light on the questions raised about SUDEP, such as:
- Why don’t more people know about SUDEP?
- Why is talking about SUDEP important?
- Why should people with epilepsy and their clinicians know about SUDEP risks?
- Why is it important to you that others get involved in SUDEP Action Day 2018?
Take whichever questions you like and use that as your talking point to get involved.
We have provided some key messages below:
- SUDEP stands for Sudden Unexpected Death in Epilepsy
- Things you can do to reduce your risk of SUDEP:
- Taking your medication regularly and reliably.
- Speak to your doctor before making any changes to your medication.
- Discuss any lifestyle changes such as having a baby or going to university with your doctor.
- Avoid excess alcohol consumption and using recreational drugs
- Make sure you have regular reviews.
- Tell your doctor if your seizures have changed.
- Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
- If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.