Christmas Appeal – Will You Be One of Our Heroes of Hope?

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Christmas Appeal: Be a Hero of Hope this Holiday Season

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For many, the holiday season represents a time for reflection, gratitude, and cherishing the moments we hold dear. It’s also a season for hope.

We understand that hope takes on a different meaning for each person. For some, it’s the hope for a brighter tomorrow, a chance to start anew. For others, it’s the hope for better health, more joy, or the fulfillment of dreams. At this special time of year, we want to share with you a story of hope, resilience, and the unbreakable spirit of a remarkable young girl named Frankie and her family.

Frankie’s journey began with challenges few parents could imagine. Born prematurely at just 31 weeks via emergency caesarian, her entrance into the world was not what parents, Alex and Jackson, had imagined. Despite the moments of sheer terror and uncertainty, it was also the beginning of a story of hope.

As Frankie’s parents looked upon their tiny daughter for the first time in NICU, their hearts swelled with love and gratitude. Despite the harrowing experience they had been though, they were blessed to have Frankie in their lives. Though they couldn’t hold her right away, the love they felt for her was immeasurable.

Sadly, the challenges did not end there. At just four months old, Frankie’s parents noticed something wasn’t right. After a visit to the emergency room, they received the devastating news tha Frankie had epilepsy.

Frankie's- Image

“I could tell by the doctor’s demeanor it was something serious,” explained Frankie’s mum, Alex. “The neurologist showed us Frankie’s MRI and told us that she was suffering from infantile spasms due to insufficient white matter in her brain.

It was like someone had put a knife in my chest. It was absolutely devastating.”

Despite all of her challenges, Frankie continues to bring her family joy, even on their most challenging days. With Frankie enduring up to three hundred seizures a day, the road ahead was uncertain, marked with doctors’ visits, tests, and a relentless search for answers.

This Christmas, we invite you to be a part of our mission to spark hope and end the stigma surrounding epilepsy. Your support can provide crucial services and support to people affected by epilepsy.

Together, we can create brighter tomorrows for those who need it most.

Ways to Get Involved:

  1. Make a Donation: Your generosity can be the beacon of hope that lights the way for those facing epilepsy’s challenges. Help us make this a season of renewed hope.
  2. Spread the Word: Share Frankie’s story and the message of hope. Let’s ignite understanding and end stigma.
  3. Get Trained: Our online training will help you learn to support your friends or family with epilepsy.