Accidents
can happen at any time to anyone. People take
risks every day, but sometimes risks people
with epilepsy have to deal with can be slightly
different from those faced by others.
Safety precautions should
be sensible and relevant to the person and situation,
with a balance between risk and restrictions.
With an awareness of
potential risks and ways in which these can
be lessened, activities can be much safer and
most people with epilepsy can live full and
active lives.
Enjoy life as much as
you can and don't restrict activities to a point
where your interests and fun are excluded.
Risks
The risk of injury varies greatly and can depend
on:
- Type of seizures –
people who have more severe seizures, clusters
of seizures or frequent falls are at higher
risk
- Frequency of seizures
– someone who has many seizures a day
is more at risk.
- Age – infants,
children and older persons are more susceptible
to injuries and accidents
- Medications –
people on multiple medications or very high
doses may suffer side effects such as drowsiness,
double vision, poor coordination
- Participation in high
risk activities – such as certain sports
(eg. rockclimbing) with poor seizure control,
drinking alcohol, taking drugs
- Any other physical
or neurological problems
Common accidents seen
and ways to lessen the likelihood of accidents
are listed below. It is important to remember
this list is not exhaustive and some suggestions
are not relevant to all people with epilepsy.
Tips
To reduce the
chance of cuts, bruises and abrasions
- Reduce clutter, sharp
or jutting edges and corners.
- Use a shower curtain
rather than a glass screen. Also use a shower
chair if necessary.
- Reinforced glass doors
are preferable or apply safety film to existing
glass.
- Wear rubber gloves
when washing dishes. When loading a dishwasher,
position sharp edges downwards.
- Use non-breakable
crockery and cordless electrical appliances
with automatic switch off.
- Minimise the use of
knives by buying pre-sliced food when possible.
To
prevent burns
- Hot water system
and heaters need to be temperature controlled.
- Avoid lightweight
and free standing heaters. Wall mounted heaters
are best. Place fixed safety guards around
the fireplace.
- Where possible use
a hand held shower and always turn the cold
water tap on first and off last.
- It is preferable to
use a microwave than a stove or oven. If using
a stove, use the back elements and turn pot
handles away when cooking.
- Avoid carrying hot
dishes of food or liquid by serving meals
from the kitchen bench.
- Do not light candles
or fires when alone.
To
prevent drowning
- Never swim alone.
- In spas, ensure that
the water is not too hot.
- Wear an approved life
jacket for water activities, including boating
and fishing.
- Avoid water sports
such as scuba and high board diving.
- Showers pose less
of a risk than a bath. If you only have a
bath, use a hand-held shower attachment.
- Do not shower or bathe
whilst alone in the house if possible.
- Shower at a time when
seizures are less likely to happen.
- Preferably have outward
opening doors, sliding doors, half doors or
doors that are easily removable fitted to
the bathrooms.
- Keep bathroom doors
unlocked.
- Turn the taps off
before getting into the bath.
To
minimise serious injuries
- Avoid high-risk activities
like using a ladder, rock climbing without
a harness or flying foxes.
- Wear helmets when
riding a bicycle, scooter, horse, or when
roller-blading or skateboarding.
- Choose a low bed and
avoid sleeping on a top bunk.
- Stand well back from
the road or platform edge when waiting for
a bus or train.
- Bathroom floors may
be less hazardous if rubber-backed mats are
used.
- Avoid living in accommodation
with stairs.
Suffocation
- Try to sleep without
a pillow or use a firm porous pillow.
- Choose a low wide
bed that has a firm mattress with a tightly
fitted sheet.
- An alarm may help
alert parents or carers to seizures at night
eg. baby monitor or intercom.
- Avoiding accidental
overdose of antiepileptic medication
- All medications should
be locked away out of reach of children and
not be left in pockets and handbags.
- If a dose of medication
is missed, the next dose should be taken as
normal. Do not double the dose.
- Discuss possible reactions
with your pharmacist and doctor before taking
any other prescribed medications or over the
counter medications.
- Consult the doctor
before altering the prescribed medication
regime.
Seizures during sleep
Many people are concerned
about the safety of their loved ones while they
are asleep. This is of particular concern to
parents of young children who have seizures
and families of people living alone.
Family or parents should
not stay awake watching for seizures. Everyone
needs sleep, and lack of it creates tiredness
and a grumpy household.
To help overcome this
concern is to:
- Place a baby monitor
in the bedroom so parents can hear any abnormal
noises (monitors available from most stores)
- Try a monitor that
detects movement when a person has a tonic
clonic seizure (ring the Epilepsy Association
for more details)
Living
alone
Living alone may or may not be a lifestyle choice.
Many people who live alone enjoy their independence,
which is important in feeling good about yourself
and control your own life.
A common problem for
people with seizures living alone, is what if
a seizure occurs, causing injury, and nobody
knows?
There are a number of
alarms available that can help people who live
alone, ranging from telephone alarms, personal
alarms, fall alarms, and daily calls. These
products are able to notify emergency assistance
or family members should a seizure occur. There
are a large variety of options available to
suit most people. Costs and service types vary
considerably.
The Epilepsy Association
or your local council will have information
on these kinds of services.
Some people may have
worked out a routine with family or neighbours
to either call, drop in or notice abnormal behaviour
(eg. the blind not being raised, lights not
on).
Medical
Identification
There are a number of reasons why we recommend
wearing a medical ID bracelet if seizures are
not fully controlled. Some of these include:
- According to a recent
survey, many members of public do not know
the correct first aid for a seizure.
- Incorrect first aid
such as putting something in someone's mouth
or restraining them can cause injury to either
party.
- A large number of
people would call an ambulance if they witnessed
a seizure.
- This is not always
necessary and can prove an inconvenience for
the person with epilepsy, mainly due to long
waits in casualty and ambulance bills.
- Some seizures may
present as if the person is intoxicated or
on drugs.
- Some people have found
themselves being questioned by police or taken
to the local station.
- Others are either
confronted or avoided by members of the public.
In the event of a seizure
happening at a time when you are in public or
with strangers, a medical ID bracelet or pendant
will alert people to the fact you have epilepsy.
This can reduce panic, make it more likely for
appropriate help to occur and prevent unnecessary
ambulance call-outs.
The association can give
you advice about the different products available.
Your pharmacist is also able to provide this
information.
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