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In this area of our site we will report on the latest research into epilepsy because research into epilepsy:

  • Can lead to significant improvements in the long term for people with epilepsy.
  • Epilepsy is under-researched and can benefit our involvement.
  • Australia does world class research especially medical research.

We also know that people with epilepsy are keen to know the latest information about epilepsy treatment and the search for a cure.


SEISMIC (Sydney Epilepsy Incidence Study to Measure Illness Consequences)

Epilepsy Action Australia and The George Institute for International Health is undertaking a major epidemiological research project to measure the impact and incidence of epilepsy.

This study known as the Sydney Epilepsy Incidence Study to Measure Illness Consequences (SEISMIC) will explore the incidence, psychosocial impact and the household economic burden of epilepsy in a large population. It is the first time this kind of study has ever been conducted in Australia. The new information it uncovers will bring many benefits to people living with the condition.

This multi-centre three-year study will recruit and follow-up all people with newly diagnosed epilepsy living in the Sydney South West Area Health Service. Recruitment sites include: Royal Prince Alfred, Prince of Wales, Sydney Children’s, Bankstown, Concord and Canterbury Hospitals.

The study aims to identify modifiable factors that enhance resilience and reduce vulnerability to the socioeconomic impact of epilepsy in an Australian population.

The results of this research will provide key data to inform the design and development of EAA services so we ensure real and positive impact to the daily lives of people living with epilepsy. At a broader level, it will enable government and healthcare practitioners to make more informed decisions about policy, funding, and management.

For more information:


Clinical trials

Effect of AED on Bone Mineral Density and Osteoporosis Risk - A twin and sister study
This research is to help determine if people who take Antiepileptic Drugs (AED's) are at greater risk of reduced bone mineral density. If they are a twins or sisters/brothers within 3 yrs of each other with one of them taking AED's they are suitable. The study is taking place through The Royal Melbourne Hospital.

The Australian Pregnancy Register
The Australian Pregnancy Register for Women on Anti-epileptic Medication is conducting research on the incidence of birth defects from pregnancies of women taking these medications.

If you are taking anti-epileptic medication and are pregnant or thinking of becoming pregnant, you may wish to be involved.

To register, phone 1800 069 722

Genetics Research
Professor Ingrid Scheffer is researching the genetics of epilepsy in twins and families at the Epilepsy Research Centre.

If you wish to participate in any epilepsy studies,
either phone us 1300 EPILEPSY (1300 37 45 37) or email us for further details.

Epilepsy Society of Australia
The Society is a professional organisation for clinicians, scientists and technologists involved in the diagnosis, treatment and research of epilepsy in Australia. The purposes of the Society are to:

  • Improve the medical care of people affected by epilepsy in Australia
  • Foster a greater scientific understanding of all aspects of epilepsy through support of research
  • Promote the exchange of medical and scientific information related to epilepsy

        Visit www.epilepsy-society.org.au

Research Links

Brain Dynamics Centre - Australia

Brain Research Institute - Australia

CentreWatch - Clinical Trials Listing - USA

Epilepsy Research Centre - Australia

Epilepsy Research Program Inc - Andrews-Reiter

National Institute of Neurological Disorders and Stroke (NINDS)

Neurosciences Victoria

Research Australia

The Epilepsy Research Foundation - UK

University of Florida Research USA

Epilepsy Society of Australia



News
Watch this space for the most up to date news about epilepsy.

1300 EPILEPSY (1300 37 45 37)
Australia Wide Priority Call


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