In
this area of our site we will report on the
latest research into epilepsy because research
into epilepsy:
-
Can lead to significant improvements in the
long term for people with epilepsy.
- Epilepsy
is under-researched and can benefit our involvement.
- Australia
does world class research especially medical
research.
We
also know that people with epilepsy are keen
to know the latest information about epilepsy
treatment and the search for a cure.
SEISMIC (Sydney Epilepsy Incidence Study to Measure Illness Consequences)
Epilepsy Action Australia and The George Institute for International Health is undertaking a major
epidemiological research project to measure the impact and incidence of epilepsy.
This study known as the Sydney Epilepsy Incidence Study to Measure Illness Consequences (SEISMIC)
will explore the incidence, psychosocial impact and the household economic burden of epilepsy in a
large population. It is the first time this kind of study has ever been conducted in Australia.
The new information it uncovers will bring many benefits to people living with the condition.
This multi-centre three-year study will recruit and follow-up all people with newly diagnosed
epilepsy living in the Sydney South West Area Health Service. Recruitment sites include: Royal
Prince Alfred, Prince of Wales, Sydney Children’s, Bankstown, Concord and Canterbury Hospitals.
The study aims to identify modifiable factors that enhance resilience and reduce vulnerability to the
socioeconomic impact of epilepsy in an Australian population.
The results of this research will provide key data to inform the design and development of EAA
services so we ensure real and positive impact to the daily lives of people living with epilepsy.
At a broader level, it will enable government and healthcare practitioners to make more informed
decisions about policy, funding, and management.
For more information:
Clinical trials
Effect
of AED on Bone Mineral Density and Osteoporosis
Risk - A twin and sister study
This
research is to help determine if people who
take Antiepileptic Drugs (AED's) are at greater
risk of reduced bone mineral density. If they
are a twins or sisters/brothers within 3 yrs
of each other with one of them taking AED's
they are suitable. The study is taking place
through The Royal Melbourne Hospital.
The
Australian Pregnancy Register
The Australian Pregnancy Register for Women
on Anti-epileptic Medication is conducting research
on the incidence of birth defects from pregnancies
of women taking these medications.
If
you are taking anti-epileptic medication and
are pregnant or thinking of becoming pregnant,
you may wish to be involved.
To
register, phone 1800 069 722
Genetics Research
Professor
Ingrid Scheffer is researching the genetics
of epilepsy in twins and families at the Epilepsy
Research Centre.
If
you wish to participate in any epilepsy studies,
either phone us 1300 EPILEPSY
(1300 37 45 37) or email
us for further details.
Epilepsy Society of Australia
The Society is a professional organisation for clinicians, scientists and technologists involved in
the diagnosis, treatment and research of epilepsy in Australia. The purposes of the Society are to:
- Improve the medical care of people affected by epilepsy in Australia
- Foster a greater scientific understanding of all aspects of epilepsy through support of research
- Promote the exchange of medical and scientific information related to epilepsy
Visit www.epilepsy-society.org.au
Research
Links
Brain
Dynamics Centre - Australia
Brain
Research Institute - Australia
CentreWatch
- Clinical Trials Listing - USA
Epilepsy
Research Centre - Australia
Epilepsy
Research Program Inc - Andrews-Reiter
National
Institute of Neurological Disorders and Stroke
(NINDS)
Neurosciences
Victoria
Research
Australia
The
Epilepsy Research Foundation - UK
University
of Florida Research USA
Epilepsy Society of Australia
News
Watch this space for the most up to date news about epilepsy.
1300 EPILEPSY (1300 37 45
37)
Australia Wide Priority Call
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