Online Communities
Epilepsy Action Australia on Facebook
The Epilepsy Action Australia Facebook page is a lively community with 3,500 members and growing everyday!
It is a great way to stay connected and hear about upcoming events and programs. It is also a good way to interact with other people who are living with the experience of epilepsy, either though a personal diagnosis or that of a friend or family member. A common use of the page is members seeking advice and sharing information with each other. In addition the page is monitored daily by EAA staff, with Epilepsy Nurse Educators offering practical advice and assistance and the Company CEO regularly checking in to interact with members!
Epilepsy in Memoriam - you are not alone
While death as a result of epilepsy is uncommon, sadly we hear far too often of such tragic loss. Epilepsy Action Australia has created a new Facebook page called “Epilepsy in Memoriam - you are not alone” dedicated to family and friends who have lost someone dear as a result of epilepsy - to provide an opportunity to honour their loved one as well as connect with others who may have gone or be going through a similar experience. To join visit www.facebook.com/epilepsyinmemoriam.
forum for e
Epilepsy Action Australia has joined forces with Epilepsy Action UK who provide an online community for people with epilepsy. forum4e is for anyone with epilepsy over the age of 16 can join, from anywhere in the world with over 3,000 members internationally.
It’s a safe and secure community, which means that only people with epilepsy, or carers of people with epilepsy who can’t use a computer themselves, are allowed to join.
forum4e enables you to discuss anything and everything with other people who have epilepsy. It has a forum with areas to discuss subjects such as medication, seizures and so on, and share experiences and anecdotes.
There’s also a chat room, a private messaging system, and each member gets their own ‘blog’ – an online diary that the other members can read.
To access forum4e go to https://www.forum4e.com/
Livewire
Connecting, Supporting and Empowering through Online Communities
Epilepsy Action Australia works in partnership with Livewire, a wholly owned subsidiary of the Starlight Children’s Foundation Australia.
Looking for a safe and friendly place to hang out, make new friends and to share your experiences with others through online chats & blogs? Like competitions and keeping up with the latest movies and music?
Well look no more…
If you, your brother, your sister or child are living with epilepsy or another chronic health condition, serious illness or disability why not join livewire and meet others who understand what life’s like and where you are coming from.
There are three online communities:
Are you over 10 and under 21, living with epilepsy or another chronic health condition, serious illness or disability this is the site for you. Just click on the link to get started.
Hey, what about your brothers and sisters? They can join in the fun in their own community! If they are over 10 and 21 tell them they can sign up now.
Mums and Dads, as well as the support of other parents and reading about their experiences in the forums, there are heaps of resources and links to help you find the information you need when you need it.
What are you waiting for? Go to http://www.livewire.org.au/
Healthshare
A free service, Healthshare features over 500 Health Challenge and Healthy Living Communities, that you can join to access health information, connect with like-minded people, share your health experiences and offer support. Healthshare has advanced privacy functionality so your profile can be as public or as anonymous as you like. Sign up to Healthshare and enjoy the benefits of Healthsharing. Visit www.healthshare.com.au
