Epilepsy Action Australia’s services include:
- Equip - An epilepsy resource for youth living with epilepsy
- Strong Foundations - For parents of school aged children with epilepsy
- Psychosocial Wellbeing for Adults - An epilepsy resource for adults living with epilepsy
- rEaction - An epilepsy resource to increase teens awareness of epilepsy
- Yarning Epilepsy
- ONLINE ACADEMY
- Western Australia Community Outreach Program
- Individual service plans
- Individual client education
- Seizure management planning
- Action Adventures
- Community education and training
- Ted-E-Bear Connection
- Individual Funding Support Program
It is estimated that over 800,000 people in Australia will be diagnosed with epilepsy at some stage in life.
Epilepsy Action Australia (EAA) is committed to delivering an equitable and consistent service to all people in Australia and is working to deliver higher, national levels of support, building services around health education and interventions to facilitate self-management.
EAA has delivered services nationwide for more than a decade and is the largest provider of specialist epilepsy services in the community for people with epilepsy. For several years EAA has been working on a national service strategy as the solution to the problem of meeting the needs of Australians living with epilepsy - incorporating the design of innovative services and delivery tools to facilitate the availability of comprehensive services across Australia, accessible to people with epilepsy, their families and their carers, no matter where they live.
EAA has developed high level staff expertise and a rich base of information about epilepsy, particularly vested in our Epilepsy Nurse Educators. We deliver services via phone, videoconference and internet and have a physical presence in most states and territories.
Clients indicate that living with epilepsy can be isolating and the diagnosis is often associated with anxiety and depression. To respond to the emotional and psychosocial needs of people with epilepsy EAA provides Adventure Therapy Camps that allow people with epilepsy to experience the dignity of risk in a supported environment. These programs build confidence, self esteem, trust and courage as well as teach life skills and provide opportunities for meeting others with epilepsy.
Individual service plans
Any person who has identified needs associated with their epilepsy can receive individualised services and support from Epilepsy Action Australia.
All services are delivered in partnership with the person with epilepsy or the family of a child with epilepsy. The service consists of information provision, case management and service provision to address individual needs through group and/or individual service activities.
Individual service programs commence with service planning. This includes a Needs Assessment and the development of an Individual Service Plan.
For the majority of people who request Epilepsy Action Australia services, the needs assessment is conducted over the phone by a case manager, though in some instances the assessment is conducted in the person’s home or another community setting.
To arrange an individual service plan please call 1300 37 45 37 or email firstname.lastname@example.org
Individual client education
Education for individuals with epilepsy and their family members about aspects of epilepsy and its management is fundamental to the ability to participate fully and safely in everyday activities.
Epilepsy Action Australia tailors education specifically for the individual, taking into consideration the specific diagnosis and manifestation of the person’s epilepsy and may include:
- Understanding the diagnosis of epilepsy
- Understanding the medical management and side effects of medication
- Understanding seizure triggers and how lifestyle can be adjusted to avoid or minimise exposure to triggers
- The accurate documentation of a seizure diary such that seizure activity can be recorded thoroughly and accurately to inform medical management of the seizures
- Safety precautions necessary for the individual person’s epilepsy
- First aid and emergency medication training
Education sessions can be provided to the person with epilepsy or in a group setting (e.g. with family members/ friends).
To arrange an education session please call 1300 37 45 37 or email email@example.com
Seizure management planning
It is in the best interest of a person experiencing seizures to minimise both the impact of seizures on their daily life and the risk of injury in the event of a seizure.
Assistance with Seizure Management Planning is a core service offered by Epilepsy Action Australia.
Each person’s seizures will be different and specific to the individual and seizure management plans will require tailoring to each person’s needs and circumstances.
A Seizure Management Plan (SMP) is a document that contains critical information for a person(s) assisting someone who experiences seizures in order to minimise the impact of seizures and reduce the risk of injury.
The process of seizure management planning involves:
- consulting with a client/parent and all identified stakeholders,
- documenting a plan, and
- providing education and training as required.
Implementation of a Seizure Management Plan is a collective responsibility of all participants.
Sometimes seizure management planning involves the development of a plan for administration of emergency medications. This service is provided by trained Epilepsy Nurse Educators who regularly undergo competency assessment in the administration of emergency medication.
We currently have an interactive online Seizure Management Plan Tool that allows you to create your own Seizure Management Plan. The tool steps you through the process of documenting the Seizure Managemen Plan and allows you to edit the plan again in the future should you need to make any changes.
This tool can be accessed at uat.epilepsy.org.au/online-academy. You will need to register and create an account to access this resource.
If you have any more questions or would like further information, please call 1300 37 45 37 or email firstname.lastname@example.org
Community education and training
Education and Training is provided by Epilepsy Action Australia to relevant professionals, disability workers, paid carers, schools, workplaces etc in order to increase the competence and confidence of various people who work with people who have epilepsy.
The primary objectives are:
- To reduce risks and safety hazards associated with epilepsy and seizures
- To increase general awareness and reduce stigma associated with epilepsy within professional groups
There are currently two streams of Education and Training:
- General Epilepsy Awareness
- Emergency Medication Training
To arrange community education or training please call 1300 37 45 37 or email email@example.com
Research has shown that people with epilepsy and their families often feel isolated, anxious and overprotective. Epilepsy Action Australia has responded by funding and facilitating residential camps for people with epilepsy and their families, with “adventure therapy” provided through the engagement of a specialist camp provider.
Adventure Therapy Camps aim to use recreation activities to change the attitudes and beliefs of people with epilepsy and their families. These camps provide fun activities to help children and adults to rebuild confidence, self esteem and trust. Knowing that camp facilitators understand epilepsy helps adults to relax. Spending time with other families promotes peer support and peer learning, while Epilepsy Nurse Educators can provide specialised information about epilepsy.
They are usually held over three days, and in various locations across Australia.
The activities undertaken at the Action Adventure are designed to extend skills, such as problem solving and team work, while also enhancing children’s self esteem, confidence and trust. Most importantly, the activities are safe and fun.
To register or enquire about an Action Adventure please click here to complete our "request assistance" form and a Service Consultant will be in contact with you. Alternatively you can call 1300 37 45 37 or email firstname.lastname@example.org